CPAPtalk.com

chzuck wrote: ↑

Wed Mar 27, 2024 4:33 pm

I did as you suggested. Quite impressive, she has more experience and knowledge than most doctors and has helped more people find helpful information than many providers and doctors. I am sorry I posted that question, I should have done some research first. I handled it poorly!

no I think you were quite polite and respectful when you asked.

we are fortunate to have her here in her capacity as moderator. there are a handful of the smart ones here. but pugsy seems to show up more than the rest.

(ducks before ozij and the others start swinging at me!)

Thank you, but really I don't think I should have ask in a public post. I am a new guy on the block and could have done better.

chzuck wrote: ↑

Wed Mar 27, 2024 8:54 am

vandownbytheriver wrote: ↑

Wed Mar 27, 2024 7:44 am

chzuck wrote: ↑

Wed Mar 27, 2024 7:17 am

I feel sort of stupid. vandownbytheriver, I checked out the info you gave me in the previous post and want to bookmark some of it, but cannot figure out how. Could you help?

Sorry, I was specifically referring to 11:20-11:30pm (big snore and FL's) and 04:05 to 04:30am (snore and FL). No events are flagged.

No, I meant that maybe you could tell me how to bookmark posts so I can refer to them later.

OK, I just went to your reply above and right-clicked on the black bold text at the top, the thread title... then I selected 'copy link location'. This is the link it made:

viewtopic.php?p=1454273#p1454273

That takes you right to the post in the topic. You can bookmark that link by not right-clicking, but just clicking, the black text at the top of the post... this puts that particular post at the top of your page... then use your browser bookmark function. I think that will work.

vandownbytheriver wrote: ↑

Wed Mar 27, 2024 9:44 pm

OK, I just went to your reply above and right-clicked on the black bold text at the top, the thread title... then I selected 'copy link location'. This is the link it made:

viewtopic.php?p=1454273#p1454273

That takes you right to the post in the topic. You can bookmark that link by not right-clicking, but just clicking, the black text at the top of the post... this puts that particular post at the top of your page... then use your browser bookmark function. I think that will work.

OK, I guess I was mistaken. I thought this forum has a bookmarks feature and that is what I was asking about. Some forums that I use have a bookmark feature within the forum, which is nice so you can keep your computer bookmarks under control.

chzuck wrote: ↑

Thu Mar 28, 2024 5:52 am

vandownbytheriver wrote: ↑

Wed Mar 27, 2024 9:44 pm

OK, I just went to your reply above and right-clicked on the black bold text at the top, the thread title... then I selected 'copy link location'. This is the link it made:

viewtopic.php?p=1454273#p1454273

That takes you right to the post in the topic. You can bookmark that link by not right-clicking, but just clicking, the black text at the top of the post... this puts that particular post at the top of your page... then use your browser bookmark function. I think that will work.

OK, I guess I was mistaken. I thought this forum has a bookmarks feature and that is what I was asking about. Some forums that I use have a bookmark feature within the forum, which is nice so you can keep your computer bookmarks under control.

I found out how to bookmark on this site. Go the the last post and where is says reply and print, just below is a wrench, left click on that and you will see a drop down box with options and one is Bookmark Topic.

Pugsy wrote: ↑

Tue Mar 26, 2024 12:18 pm

Well....you don't have complex sleep apnea as except for a one maybe central apnea....all your flagged events are SWJ (sleep/wake/junk) meaning you weren't asleep when they were flagged.
LOTS and LOTS of evidence of arousal/awake breathing going on.

I have my doubts as to whether or not you need that much pressure as well....strongly leaning towards the "not" side of things.

Did you have much (if any) nasal congestion last night?

How are you feeling today?

Any events flagged while not asleep don't count for much except to note that your sleep quality is in the toilet.
Those little clusters of flagged events are a symptom of the poor sleep quality and not the cause of the poor sleep.

Much more detective work is going to be needed.

Do you happen to have a copy of your diagnostic sleep study? Was it done at home or in a sleep lab?

Home Study https://drive.google.com/file/d/1dLzG-O ... drive_link
Sleep Lab Study https://drive.google.com/file/d/1fTd_1n ... drive_link

Short on time so I just did a quick glance at the sleep studies and I will look more closely tomorrow.

Questions....

Have you talked to your doctor about the PLMD results?
If not...you need to because those leg movements could be a factor in your crappy sleep quality.

How are you feeling during the day?

How would you rate your sleep quality?

"The patient spent 39% of the total sleep time in the supine position and 74% of the respiratory events
occurred while in this position."

I believe this is the key to better sleep... get off your back as much as possible. Trying to sleep on your back is going to drive your pressures very high. Just my opinion.

Pugsy wrote: ↑

Fri Mar 29, 2024 8:37 pm

Have you talked to your doctor about the PLMD results?
If not...you need to because those leg movements could be a factor in your crappy sleep quality.

IMO that would depend upon the doctor.

I'd say the jury's still out on Yaroslav, and if the General Practice guy gets the Deer/Headlights Look when you ask "So what about them PLMs?" it might just be a waste of a co-pay.

Or make things a little worse.

Pugsy wrote: ↑

Fri Mar 29, 2024 8:37 pm

Short on time so I just did a quick glance at the sleep studies and I will look more closely tomorrow.

Questions....

Have you talked to your doctor about the PLMD results?
If not...you need to because those leg movements could be a factor in your crappy sleep quality.

How are you feeling during the day?

How would you rate your sleep quality?

I must admit I never really looked at those results mostly because I don't understand them. I will go back and read through them and see what I can understand. PLMD, no idea what that means, but I guess I will learn looking through the results.

I feel good during the day considering my other issues (PMR and knee issues)

It seems on days following a higher AHI I can dose off quicker if I sit down in a comfy chair.

Thanks for looking at my reports. I could not post them any other way, but to my Google Drive or my website.

Rubicon wrote: ↑

Sat Mar 30, 2024 3:39 am

IMO that would depend upon the doctor.

I'd say the jury's still out on Yaroslav, and if the General Practice guy gets the Deer/Headlights Look when you ask "So what about them PLMs?" it might just be a waste of a co-pay.

Or make things a little worse.

I would not waste my time on seeing my GP on this. I go to a Pulmonary Group and below is what she said when I messaged her about my rise in my AHI.
I reviewed your last month compliance and data revealed average events 7.2 / hour. Mild leak noted. Are you noticing any leak, I recommend replacing mask and monitoring for any leak. You had severe sleep apnea, AHI 56 on your sleep study. I recommend continuing same pressure.

PLMD periodic limb movement disorder

https://www.google.com/search?client=fi ... 1-d&q=PLMD

How are your iron levels?

BTW....I don't know that I would spend much time trying to sleep on my side. From the sleep studies it's not like your OSA is significantly less when on your side. Non supine AHI is damn near the same as supine AHI in terms of diagnostic sleep study.
You can of course try but I don't know that it is going to make much difference. Sometimes trying to stay off our backs ends up causing more sleep problems than it fixes.

Pugsy wrote: ↑

Sat Mar 30, 2024 9:32 am

PLMD periodic limb movement disorder

https://www.google.com/search?client=fi ... 1-d&q=PLMD

How are your iron levels?

BTW....I don't know that I would spend much time trying to sleep on my side. From the sleep studies it's not like your OSA is significantly less when on your side. Non supine AHI is damn near the same as supine AHI in terms of diagnostic sleep study.
You can of course try but I don't know that it is going to make much difference. Sometimes trying to stay off our backs ends up causing more sleep problems than it fixes.

I did some looking at my sleep study reports and did see the leg movement study results. I am learning, thanks to you and this forum. Thanks for that link, I will look at it. Nothing was ever mentioned to me about that.
I am on Methotrexate for PMR and I get my blood checked every two months. So I have noticed a trend downward for red blood cell count, so I had my iron checked and it was normal.

Look up the side effects for Methotrexate.....tiredness and drowsiness are on the list.

You have this.....Polymyalgia rheumatica???
That also could be affecting sleep quality or maybe causing some discomfort which in turn affects sleep quality.

I think that the bulk of your OSA problem is probably adequately dealt with.
The elevated AHI at times...that is a symptom of not being asleep and not necessarily the cause of the not being asleep.

I think that you have more than one problem going on that can affect sleep quality.
Remember....the machine can only try to fix the airway problem. It can't do a damn thing for the other stuff you have going on.

You have a sleep quality problem for sure...now why??? That's unknown at this time but you have a few potential suspects.

Pugsy wrote: ↑

Sat Mar 30, 2024 10:24 am

Look up the side effects for Methotrexate.....tiredness and drowsiness are on the list.

You have this.....Polymyalgia rheumatica???
That also could be affecting sleep quality or maybe causing some discomfort which in turn affects sleep quality.

I think that the bulk of your OSA problem is probably adequately dealt with.
The elevated AHI at times...that is a symptom of not being asleep and not necessarily the cause of the not being asleep.

I think that you have more than one problem going on that can affect sleep quality.
Remember....the machine can only try to fix the airway problem. It can't do a damn thing for the other stuff you have going on.

You have a sleep quality problem for sure...now why??? That's unknown at this time but you have a few potential suspects.

Yes, Polymyalgia rheumatica, got it maybe a year after my hip replacement along with thin skin. Most of the time my arms and the top of my hands look like I have been in hand to hand combat. I was a millwright all my life and still like working with my hands fixing things and making things and so it is practically impossible to not get bruised even through gloves and sleeves I wear to protect my arms.

I do, by far feel better than pre CPAP machine. Before the machine I would dose off if I sat in a soft chair almost any time of day. Could not stay awake during a church service and just felt more tired during the day.

I will keep plugging away at this. Thankful for this site and you. I have learned much already, even learned I have another abnormality, limb movement. Still cannot understand why that was not mentioned. Growing old is an adventure not meant for sissies. Thank you again for your interest and help!