Driving me insane
Driving me insane
OK, so my sleep study and my CPAP data both agree I do not have OSA. I had a sleep tech look at my CPAP data and he didn't know what was going on. It's looking like it's probably not UARS either.
It is definitely some sort of SDB based on the studies, the data, the techs, and some experienced folks here. I manage to get REALLY crappy sleep but have NOT managed to get a diagnosis.
It makes it very difficult to look forward to a "cure" when I don't even know what's supposed to be cured!
So far, the CPAP has not improved the quality of my sleep. The only thing noticeable is that I don't wake up 4-5 times in the night (that I remember) thinking it's morning, but I'm not even sure that's an improvement. After my 1st sleep study they asked how many times I woke up and I said 2. Truth was, I underestimated by 20. 22 awakenings in 6 hours, 90% of which I had no recollection.
I already have a medical issue (not sleep related at all) for which I have had every possible test and exam only to have the doctors throw their hands up in the air and say "we don't know what's causing it" and label it idiopathic. That's fine for them, they can wash their hands and be done with it. I am the one that has to live with it knowing nothing can be done. I sure don't need to never ever get sleep again and be told there's nothing that can be done.
Grrrrrrr.....
I'm giving points to anyone who can suggest a possible diagnosis.
Extra points if you can Identify the breed of my puppy in the picture lol
It is definitely some sort of SDB based on the studies, the data, the techs, and some experienced folks here. I manage to get REALLY crappy sleep but have NOT managed to get a diagnosis.
It makes it very difficult to look forward to a "cure" when I don't even know what's supposed to be cured!
So far, the CPAP has not improved the quality of my sleep. The only thing noticeable is that I don't wake up 4-5 times in the night (that I remember) thinking it's morning, but I'm not even sure that's an improvement. After my 1st sleep study they asked how many times I woke up and I said 2. Truth was, I underestimated by 20. 22 awakenings in 6 hours, 90% of which I had no recollection.
I already have a medical issue (not sleep related at all) for which I have had every possible test and exam only to have the doctors throw their hands up in the air and say "we don't know what's causing it" and label it idiopathic. That's fine for them, they can wash their hands and be done with it. I am the one that has to live with it knowing nothing can be done. I sure don't need to never ever get sleep again and be told there's nothing that can be done.
Grrrrrrr.....
I'm giving points to anyone who can suggest a possible diagnosis.
Extra points if you can Identify the breed of my puppy in the picture lol
Phillips 960 AutoSV Paving Brick, Phillips Dreamwear Mask - Nothing is working.
Diagnosis of crappy sleep, desats under 80, maybe UARS
Diagnosis of crappy sleep, desats under 80, maybe UARS
- Bertha deBlues
- Posts: 314
- Joined: Sun Aug 20, 2017 8:36 am
Re: Driving me insane
Um. . . I would say that's a Biglovable. Yep, yep.MaxINTJ wrote: Extra points if you can Identify the breed of my puppy in the picture lol
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And in the end the love you take is equal to the love you make. - Paul McCartney
Re: Driving me insane
LOL, that he is! Just a big teddy bear.Bertha deBlues wrote:Um. . . I would say that's a Biglovable. Yep, yep.MaxINTJ wrote: Extra points if you can Identify the breed of my puppy in the picture lol
But, unfortunately, Biglovable is not a recognized breed lol
Phillips 960 AutoSV Paving Brick, Phillips Dreamwear Mask - Nothing is working.
Diagnosis of crappy sleep, desats under 80, maybe UARS
Diagnosis of crappy sleep, desats under 80, maybe UARS
Re: Driving me insane
Been there, done that.xxyzx wrote: you need a FULL physical with COMPLETE LABS - ALL of them not just the usual suspects
then see all the specialists your family doc recommends - including heart lung allergy skin ortho stomach intestines - the whole system
BTW, is your keyboard missing both Shift keys, or do you just not know that the beginning of a sentence should be capitalized?
Phillips 960 AutoSV Paving Brick, Phillips Dreamwear Mask - Nothing is working.
Diagnosis of crappy sleep, desats under 80, maybe UARS
Diagnosis of crappy sleep, desats under 80, maybe UARS
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- Posts: 107
- Joined: Tue Aug 29, 2017 12:46 pm
Re: Driving me insane
Anatolian Shepherd?
Are you on any medications? This is a long shot, but I recently found that a medication was causing sleep problems for me.. but only when using the extended release version. I did not notice that I was sleeping any differently, but the daytime problems were really terrible (I was actually suffering) and getting worse each day.
I was told that I may not need the medication if cpap was successful, so had switched to the non-extended release version and that is when I found out that it had been the meds (the very next day, the symptoms dramatically improved). I do have a genetic mutation though which affects the way I metabolize some drugs, so that I need lower doses than you'd expect.
Are you on any medications? This is a long shot, but I recently found that a medication was causing sleep problems for me.. but only when using the extended release version. I did not notice that I was sleeping any differently, but the daytime problems were really terrible (I was actually suffering) and getting worse each day.
I was told that I may not need the medication if cpap was successful, so had switched to the non-extended release version and that is when I found out that it had been the meds (the very next day, the symptoms dramatically improved). I do have a genetic mutation though which affects the way I metabolize some drugs, so that I need lower doses than you'd expect.
Re: Driving me insane
He's an ignorant engineer that flunked 3rd grade.MaxINTJ wrote:Been there, done that.xxyzx wrote: you need a FULL physical with COMPLETE LABS - ALL of them not just the usual suspects
then see all the specialists your family doc recommends - including heart lung allergy skin ortho stomach intestines - the whole system
BTW, is your keyboard missing both Shift keys, or do you just not know that the beginning of a sentence should be capitalized?
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
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Additional Comments: Back up is S9 Autoset...... |
- Bertha deBlues
- Posts: 314
- Joined: Sun Aug 20, 2017 8:36 am
Re: Driving me insane
What you're experiencing sounds awful, and I wish I could help. You're remarkably civil for being sleep-deprived.
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Machine: AirSense 10 AutoSet with Heated Humidifer + P10 Nasal Pillow Mask Bundle |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
And in the end the love you take is equal to the love you make. - Paul McCartney
Re: Driving me insane
beagle/lab?
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Re: Driving me insane
That is the tallest tale I have ever heard, what did you do make it up as you went along???????????????????? That proves that you are a big fat teller of lies.xxyzx wrote:=====MaxINTJ wrote:Been there, done that.xxyzx wrote: you need a FULL physical with COMPLETE LABS - ALL of them not just the usual suspects
then see all the specialists your family doc recommends - including heart lung allergy skin ortho stomach intestines - the whole system
BTW, is your keyboard missing both Shift keys, or do you just not know that the beginning of a sentence should be capitalized?
dont have a keyboard
no hands
lost them in combat defending freedom
i use voice to speech
and it keeps confusing shift with another word that better describes libtards
Re: Driving me insanehttp://www.cpaptalk.com/viewtopic/t156498/p
xxyzx wrote:lsat is a libtard bully who failed teh bar exam twice
How would you know that????? Even if he had failed the bar exam twice, do you really think he would have said that on the forum???
My h, who is a retired lawyer, just had a good laugh.
.
.
Resmed AirSense 10 Autoset for her w/humid air/heated Humidifier
Bleep/P10
Bleep/P10
- Bertha deBlues
- Posts: 314
- Joined: Sun Aug 20, 2017 8:36 am
Re: Driving me insane
Can we please get this thread back on track? Can anyone offer useful advice?
_________________
Machine: AirSense 10 AutoSet with Heated Humidifer + P10 Nasal Pillow Mask Bundle |
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear |
And in the end the love you take is equal to the love you make. - Paul McCartney
Re: Driving me insane
.
I wish I could help. I don't even know the dog breed, but he's sure cute!
I wish I could help. I don't even know the dog breed, but he's sure cute!
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Machine: DreamStation 2 Auto CPAP Advanced with Humidifier |
Mask: Hybrid Full Face CPAP Mask with Nasal Pillows and Headgear |
Additional Comments: Oscar Software | APAP: 9-10 [ CMS-50F Pulse/Ox |
Re: Driving me insane
Hey...You know what? If I took it I would fail it miserably.....I never said or insinuated that I was a lawyer. In fact I hate lawyers. Like I have said in the past... the alphabet boy is an idiot. He is ASSumingxxyzx wrote:===LSAT wrote:He's an ignorant engineer that flunked 3rd grade.MaxINTJ wrote:Been there, done that.xxyzx wrote: you need a FULL physical with COMPLETE LABS - ALL of them not just the usual suspects
then see all the specialists your family doc recommends - including heart lung allergy skin ortho stomach intestines - the whole system
BTW, is your keyboard missing both Shift keys, or do you just not know that the beginning of a sentence should be capitalized?
lsat is a libtard bully who failed teh bar exam twice
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion) |
Additional Comments: Back up is S9 Autoset...... |
Re: Driving me insane
God will get you for that one.xxyzx wrote:dont have a keyboard
no hands
lost them in combat defending freedom
Re: Driving me insane
Your CPAP telling you that you don't have OSA is like putting on your glasses and saying, "I see just fine, so I must not need glasses." Your CPAP is treating you, not diagnosing you.
If you want help here, it's best to use Sleepyhead software and upload some data for us to look at. There are tutorials up in the top section of the home page.
If you want help here, it's best to use Sleepyhead software and upload some data for us to look at. There are tutorials up in the top section of the home page.
_________________
Machine: ResMed AirSense™ 10 AutoSet™ CPAP Machine with HumidAir™ Heated Humidifier |
Mask: Bleep DreamPort CPAP Mask Solution |
Additional Comments: Pressure 13-20, EPR 3 |