I'll definitely google this doctor. And that's a great idea for my next doctor's appointment. My partner can't come, but having a document would be helpful.Cpapian wrote:Another doctor you might think about consulting is Dr. Steven Parks. He is in New York, I believe, which is a little closer than Australia. He writes books, has a website with info, and from what I have heard an expert on UARS. With technology today, you might be able to send him your sleep tests results and have a conference call for your appointment.
You might already do these things, but in case you don't here are two suggestions re doctor's appointments.
With respect to your doctor who laughed at you, please take your partner with you to your next doctor appointment. If your partner can't come bring someone to be your advocate. Advise your advocate/partner when you want them to step in, or not, and what you want them to do i.e. comfort you or scold the doctor, whatever you think is best. (This helps to temper the doctor's manner)
Also, you have a complex problem, so bring them a summary of your situation. Have someone edit it for clarity, remove emotional adjectives. Include a brief description of the problem, current medication, other non-related medical issues, what has been done and results and include a final section of the ramifications of this illness on your work. (This removes the emotion from describing your problem, eliminates recycling old ideas and, the doctor has to pay attention because it is no longer a "he said, he said" situation).
I don't have great sleep either, I fix it then loose it, then fix it and loose it continually. Luckily, I am retired so no work impact. But just minutes of REM (per my FitBit Charge 2). I have been reading about sleep architecture and one thing I noticed is the purpose of REM is unknown. People without REM do not show problems with memory and cognition. Maybe that is why doctors are saying your sleep is fine.
What language do you talk in when you are asleep?
And apparently the language is mostly gibberish, until it turns into profanities. Not going to post quotes on this boad.