OT my story

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
User avatar
Stormynights
Posts: 2273
Joined: Wed Mar 10, 2010 7:01 pm
Location: Oklahoma

Re: OT my story

Post by Stormynights » Tue Oct 15, 2013 9:07 pm

fordjx4000 wrote:im dying from my health issues
I don't know what to say. I will pray for you. I do believe in prayer. Your condition is so rare from what I was able to learn from Google that you possibly not find any medical help here from someone else's experiences but We can offer friendship. Just let us know what you need. There are so many wonderful caring people here for you.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV

User avatar
DoriC
Posts: 5215
Joined: Sat Sep 13, 2008 9:28 pm
Location: NJ

Re: OT my story

Post by DoriC » Tue Oct 15, 2013 9:31 pm

Hi Chantilly, I think you know by now you've got lots of good friends here and hope you'll post regularly. If you have any specific questions about your ASV therapy I'm sure JohnBFisher and some others would be happy to help with that. Be on the lookout for the package I sent you, it should be arriving any day.

_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Humidifier: HumidAire H4i™ Heated Humidifier
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L,
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08

User avatar
fordjx4000
Posts: 202
Joined: Sun Jan 01, 2012 1:25 am
Location: Greenwood Indiana

Re: OT my story

Post by fordjx4000 » Tue Oct 15, 2013 9:40 pm

ive been watching the mail box dori c
kind regards chantilly

User avatar
chunkyfrog
Posts: 34432
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nebraska--I am sworn to keep the secret of this paradise.

Re: OT my story

Post by chunkyfrog » Tue Oct 15, 2013 9:42 pm

Welcome to our clan, Chantilly.
We're on your side.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

User avatar
fordjx4000
Posts: 202
Joined: Sun Jan 01, 2012 1:25 am
Location: Greenwood Indiana

Re: OT my story

Post by fordjx4000 » Tue Oct 15, 2013 9:44 pm

for as long as god lets me live ill be here on this site
kind regards chantilly

User avatar
Stormynights
Posts: 2273
Joined: Wed Mar 10, 2010 7:01 pm
Location: Oklahoma

Re: OT my story

Post by Stormynights » Tue Oct 15, 2013 11:17 pm

fordjx4000 wrote:for as long as god lets me live ill be here on this site
Stay with us. We care about you.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV

User avatar
pootsie
Posts: 229
Joined: Mon Apr 29, 2013 6:23 pm

Re: OT my story

Post by pootsie » Thu Oct 17, 2013 9:20 am

fordjx4000 wrote:for as long as god lets me live ill be here on this site

We* look forward to having you stick around. Go ahead and give your doctors a nice surprise. That can happen, you know!

*I am pretty sure I can safely say this for more than just me

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Pressure: 9 cm H2O. Diagnosis: OSA with AHI 10.6.
You are the Zzz's knees!

User avatar
fordjx4000
Posts: 202
Joined: Sun Jan 01, 2012 1:25 am
Location: Greenwood Indiana

Re: OT my story

Post by fordjx4000 » Thu Oct 17, 2013 4:56 pm

i made a picture timeline of my life from birth till age 20 it can be found here https://www.youtube.com/watch?v=pF0A1NUYh5A
kind regards chantilly

User avatar
Stormynights
Posts: 2273
Joined: Wed Mar 10, 2010 7:01 pm
Location: Oklahoma

Re: OT my story

Post by Stormynights » Thu Oct 17, 2013 6:06 pm

fordjx4000 wrote:i made a picture timeline of my life from birth till age 20 it can be found here https://www.youtube.com/watch?v=pF0A1NUYh5A
I watched you. You are a beautiful girl. Thank you for sharing.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV

User avatar
DoriC
Posts: 5215
Joined: Sat Sep 13, 2008 9:28 pm
Location: NJ

Re: OT my story

Post by DoriC » Thu Oct 17, 2013 6:26 pm

There's one photo of you smiling and I love that one!

_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear
Humidifier: HumidAire H4i™ Heated Humidifier
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L,
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08

User avatar
fordjx4000
Posts: 202
Joined: Sun Jan 01, 2012 1:25 am
Location: Greenwood Indiana

Re: OT my story

Post by fordjx4000 » Thu Oct 17, 2013 6:48 pm

ty i dont smile alot but i know i have friends and support here
kind regards chantilly

User avatar
Julie
Posts: 19915
Joined: Tue Feb 28, 2006 12:58 pm

Re: OT my story

Post by Julie » Thu Oct 17, 2013 6:58 pm


User avatar
fordjx4000
Posts: 202
Joined: Sun Jan 01, 2012 1:25 am
Location: Greenwood Indiana

Re: OT my story

Post by fordjx4000 » Thu Oct 17, 2013 7:04 pm

this fourm has gave me hope and made me happy thank u everyone for ur support
kind regards chantilly

User avatar
caffeinatedcfo
Posts: 690
Joined: Sun Mar 24, 2013 9:19 am
Location: Upstate NY

Re: OT my story

Post by caffeinatedcfo » Thu Oct 17, 2013 7:09 pm

Welcome and thanks for sharing Chatilly! You are a strong fighter keep up your spirits and we're here for ya!

_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control
Additional Comments: SleepyHead software; using APAP mode 10-12cm & EPR 3

User avatar
hueyville
Posts: 255
Joined: Sun Sep 01, 2013 8:37 pm
Location: Foothills of Blue Ridge Mountains
Contact:

Re: OT my story

Post by hueyville » Thu Oct 17, 2013 8:04 pm

Chantilly, I posted in one of your other threads letting you know that you have been added to the prayer list for my weekly prayer group and our daily family list. I assume you have read some of my "raging bull in a china shop" style posts. I am a bit split personality as am gruff and tough when something appears that I cant fix. I am the type who tries to fix every broken thing or person I meet even though I know God is that only true healer. You girl in 36 hours have affected me significantly. I have been fighting the ramifications from a severe bead trauma for 3 years and most of the time only show about 0.01% of the grace I read in your posts.

I am 50 years old and a former professional bicycle racer, rock climber, high altitude mountain guide and writer. I have travelled the world and done more than most any 20 other people will do in a lifetime and spend more time ranting about not being able to persue my pde ious sports than appreciating how much God has blessed me with. You are the spirit I see in children that are in my doctors offices who are unable to walk or other basic functions but have a smile on their face as I frown. People like you are special. I see your picture is taken in a hospital room so assume you spend a lot of time there. But I see joy and contentment in your beautiful face.

While everyone is dying, I assume you are in a special catagory of extreme closeness with that knowledge. As my systems keep shutting down I fear that I may be much closer than most myself. I take peace in God best I can and try to absorb that unconditional joy I keep zseing in the kids that I meet at the hospital and doctors. Keep being the angel you are and keep us informed. I have a tremendous library of Bibles, religious books and theological reading. If you ever need a special book let me know and will send.
For the time will come when they will not endure sound doctrine, but according to their own desires, because they have itching ears, they will heap up for themselves teachers; and they will turn their ears away from the truth