I don't know what to say. I will pray for you. I do believe in prayer. Your condition is so rare from what I was able to learn from Google that you possibly not find any medical help here from someone else's experiences but We can offer friendship. Just let us know what you need. There are so many wonderful caring people here for you.fordjx4000 wrote:im dying from my health issues
OT my story
- Stormynights
- Posts: 2273
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- Location: Oklahoma
Re: OT my story
_________________
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Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
Re: OT my story
Hi Chantilly, I think you know by now you've got lots of good friends here and hope you'll post regularly. If you have any specific questions about your ASV therapy I'm sure JohnBFisher and some others would be happy to help with that. Be on the lookout for the package I sent you, it should be arriving any day.
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: HumidAire H4i™ Heated Humidifier |
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L, |
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
- fordjx4000
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- chunkyfrog
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Re: OT my story
Welcome to our clan, Chantilly.
We're on your side.
We're on your side.
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- fordjx4000
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- Location: Greenwood Indiana
- Stormynights
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- Location: Oklahoma
Re: OT my story
Stay with us. We care about you.fordjx4000 wrote:for as long as god lets me live ill be here on this site
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
Re: OT my story
fordjx4000 wrote:for as long as god lets me live ill be here on this site
We* look forward to having you stick around. Go ahead and give your doctors a nice surprise. That can happen, you know!
*I am pretty sure I can safely say this for more than just me
_________________
Mask: Swift™ FX Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
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You are the Zzz's knees!
- fordjx4000
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Re: OT my story
i made a picture timeline of my life from birth till age 20 it can be found here https://www.youtube.com/watch?v=pF0A1NUYh5A
kind regards chantilly
- Stormynights
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- Location: Oklahoma
Re: OT my story
I watched you. You are a beautiful girl. Thank you for sharing.fordjx4000 wrote:i made a picture timeline of my life from birth till age 20 it can be found here https://www.youtube.com/watch?v=pF0A1NUYh5A
_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear |
Humidifier: S9™ Series H5i™ Heated Humidifier with Climate Control |
Additional Comments: Pressure EPAP 5.8 IPAP 9.4-21.8 PS 3.6/16 S9 Vpap Adapt ASV |
Re: OT my story
There's one photo of you smiling and I love that one!
_________________
Mask: Mirage Quattro™ Full Face CPAP Mask with Headgear |
Humidifier: HumidAire H4i™ Heated Humidifier |
Additional Comments: 14/8.4,PS=4, UMFF, 02@2L, |
"Do or Do Not-There Is No Try"-"Yoda"
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
"We are what we repeatedly do,so excellence
is not an act but a habit"-"Aristotle"
DEAR HUBBY BEGAN CPAP 9/2/08
- fordjx4000
- Posts: 202
- Joined: Sun Jan 01, 2012 1:25 am
- Location: Greenwood Indiana
Re: OT my story
ty i dont smile alot but i know i have friends and support here
kind regards chantilly
Re: OT my story
_________________
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Humidifier: IntelliPAP Integrated Heated Humidifier |
- fordjx4000
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- Location: Greenwood Indiana
Re: OT my story
this fourm has gave me hope and made me happy thank u everyone for ur support
kind regards chantilly
- caffeinatedcfo
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Re: OT my story
Welcome and thanks for sharing Chatilly! You are a strong fighter keep up your spirits and we're here for ya!
_________________
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- hueyville
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Re: OT my story
Chantilly, I posted in one of your other threads letting you know that you have been added to the prayer list for my weekly prayer group and our daily family list. I assume you have read some of my "raging bull in a china shop" style posts. I am a bit split personality as am gruff and tough when something appears that I cant fix. I am the type who tries to fix every broken thing or person I meet even though I know God is that only true healer. You girl in 36 hours have affected me significantly. I have been fighting the ramifications from a severe bead trauma for 3 years and most of the time only show about 0.01% of the grace I read in your posts.
I am 50 years old and a former professional bicycle racer, rock climber, high altitude mountain guide and writer. I have travelled the world and done more than most any 20 other people will do in a lifetime and spend more time ranting about not being able to persue my pde ious sports than appreciating how much God has blessed me with. You are the spirit I see in children that are in my doctors offices who are unable to walk or other basic functions but have a smile on their face as I frown. People like you are special. I see your picture is taken in a hospital room so assume you spend a lot of time there. But I see joy and contentment in your beautiful face.
While everyone is dying, I assume you are in a special catagory of extreme closeness with that knowledge. As my systems keep shutting down I fear that I may be much closer than most myself. I take peace in God best I can and try to absorb that unconditional joy I keep zseing in the kids that I meet at the hospital and doctors. Keep being the angel you are and keep us informed. I have a tremendous library of Bibles, religious books and theological reading. If you ever need a special book let me know and will send.
I am 50 years old and a former professional bicycle racer, rock climber, high altitude mountain guide and writer. I have travelled the world and done more than most any 20 other people will do in a lifetime and spend more time ranting about not being able to persue my pde ious sports than appreciating how much God has blessed me with. You are the spirit I see in children that are in my doctors offices who are unable to walk or other basic functions but have a smile on their face as I frown. People like you are special. I see your picture is taken in a hospital room so assume you spend a lot of time there. But I see joy and contentment in your beautiful face.
While everyone is dying, I assume you are in a special catagory of extreme closeness with that knowledge. As my systems keep shutting down I fear that I may be much closer than most myself. I take peace in God best I can and try to absorb that unconditional joy I keep zseing in the kids that I meet at the hospital and doctors. Keep being the angel you are and keep us informed. I have a tremendous library of Bibles, religious books and theological reading. If you ever need a special book let me know and will send.
For the time will come when they will not endure sound doctrine, but according to their own desires, because they have itching ears, they will heap up for themselves teachers; and they will turn their ears away from the truth