Doctor told me "some people just don't tolerate CPAP"

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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ChicagoGranny
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Re: Doctor told me "some people just don't tolerate CPAP"

Post by ChicagoGranny » Sun Sep 16, 2018 6:53 pm

Mark55 wrote:
Sun Sep 16, 2018 5:13 pm
I fail to see what the big fuss is, according to a few members here
It's just one member.

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palerider
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Re: Doctor told me "some people just don't tolerate CPAP"

Post by palerider » Sun Sep 16, 2018 6:56 pm

ChicagoGranny wrote:
Sun Sep 16, 2018 6:53 pm
Mark55 wrote:
Sun Sep 16, 2018 5:13 pm
I fail to see what the big fuss is, according to a few members here
It's just one member.
Who likes to make fusses, and thinks his ideas are the only 'right' ones. :roll:

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Re: Doctor told me "some people just don't tolerate CPAP"

Post by Stom » Sun Sep 16, 2018 7:01 pm

ChicagoGranny wrote:
Sun Sep 16, 2018 6:53 pm
It's just one member.
It's really not. I've talked with a number of other forum members who have the same issue, but few are willing to mention it in public because of the lecture and/or shout down they will get as I'm getting her and have in the past. But even the defenders aren't saying PR is never indecorous, rather they say "it's ok/good because..."

And, again, not a huge deal in this thread, but the back and forth kind of blows it out of proportion.
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palerider
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Re: Doctor told me "some people just don't tolerate CPAP"

Post by palerider » Sun Sep 16, 2018 7:05 pm

palerider wrote:
Sun Sep 16, 2018 1:07 am
snarch wrote:
Sun Sep 16, 2018 12:48 am
I hope to hear from you again on my next post after I do some homework on CAs and play with the epr.
Do keep everything in one thread.
On second thought, make a new one, this one's been trolled too much.

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Re: Doctor told me "some people just don't tolerate CPAP"

Post by greatunclebill » Sun Sep 16, 2018 7:22 pm

Wulfman... wrote:
Sun Sep 16, 2018 3:23 pm
When I see "Doctor told me........" I think of some of these old advertisements.......


Image

Image

Image


Den

.
In my 22 years working in hospitals back in the day, when i was a smoker I smoked in the smoking break rooms with many, many doctors.

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Re: Doctor told me "some people just don't tolerate CPAP"

Post by Okie bipap » Sun Sep 16, 2018 8:41 pm

I started smoking when our family doctor recommended it instead of putting me on tranquilizers (around 1960). I only smoked for around 4 or 5 years, but when I quit I was going through two to three packs a day. I really got upset when they went to 25 cents a pack in the BX.

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Re: Doctor told me "some people just don't tolerate CPAP"

Post by ozzyluvshockey21 » Sat Sep 22, 2018 9:07 am

I tried for YEARS to sleep on a cpap and at best could make it half the night. It was a miserable battle for so long. Now that the auto feature is on most cpap’s it is worlds better. I was never able to sleep an entire night before the auto feature. Are you on constant pressure or auto? Maybe something to think about.


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Re: Doctor told me

Post by djams » Sat Sep 22, 2018 11:12 am

ozzyluvshockey21 wrote:
Sat Sep 22, 2018 9:07 am
I tried for YEARS to sleep on a cpap and at best could make it half the night. It was a miserable battle for so long. Now that the auto feature is on most cpap’s it is worlds better. I was never able to sleep an entire night before the auto feature. Are you on constant pressure or auto? Maybe something to think about.


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I've often thought about this. Not sure I'd have been successful without all the comfort features on the modern machines.

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Re: Doctor told me

Post by zonker » Sat Sep 22, 2018 11:22 am

djams wrote:
Sat Sep 22, 2018 11:12 am
ozzyluvshockey21 wrote:
Sat Sep 22, 2018 9:07 am
I tried for YEARS to sleep on a cpap and at best could make it half the night. It was a miserable battle for so long. Now that the auto feature is on most cpap’s it is worlds better. I was never able to sleep an entire night before the auto feature. Are you on constant pressure or auto? Maybe something to think about.


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I've often thought about this. Not sure I'd have been successful without all the comfort features on the modern machines.

oh. i'm absolutely convinced i never would have made it without the modern day auto pap. i have a tendency to sleep very differently in the second half of the night. i figure if i had this therapy "back in the day" and had just fixed pressure, i'd never be able to make it through the whole night.
people say i'm self absorbed.
but that's enough about them.
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ChicagoGranny
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Re: Doctor told me "some people just don't tolerate CPAP"

Post by ChicagoGranny » Sat Sep 22, 2018 11:47 am

zonker wrote:
Sat Sep 22, 2018 11:22 am
oh. i'm absolutely convinced i never would have made it without the modern day auto pap. i have a tendency to sleep very differently in the second half of the night. i figure if i had this therapy "back in the day" and had just fixed pressure, i'd never be able to make it through the whole night.
It sounds like your CPAP pressure was titrated for the first half of the night and was too low for the second half of the night. Proper titration of your CPAP may have made it a success for you. Having said that, I second your opinion that APAPs are a significant advance in therapy. They not only adjust for the patient's varying pressure requirement, but can also overcome a poor sleep lab titration.

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Re: Doctor told me

Post by palerider » Sat Sep 22, 2018 2:04 pm

ozzyluvshockey21 wrote:
Sat Sep 22, 2018 9:07 am
Now that the auto feature is on most cpap’s
Uh, it's not.

Resmed:
Airsense 10 CPAP < -not auto
Airsense 10 Elite <- not auto
Airsense 10 Autoset <- auto
Airsense 10 Autoset For Her <- auto
Aircurve 10 S <- not auto
Aircurve 10 ST <- not auto
Aircurve 10 Vauto <- auto
Aircurve 10 ASV <- auto
Aircurve 10 iVAPS <- not auto

Respironics
Dreamstation CPAP <- not auto
Dreamstation Pro <- not auto
Dreamstation Auto <- auto
Dreamstation Bipap Pro <- not auto etc.

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Re: Doctor told me "some people just don't tolerate CPAP"

Post by jnk... » Sat Sep 22, 2018 5:14 pm

I believe that approximately 80% of PAP-machine unit sales by CPAP.com are APAPs, and only 20% or so are CPAPs. So in that sense, maybe . . .


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Re: Doctor told me "some people just don't tolerate CPAP"

Post by chunkyfrog » Sat Sep 22, 2018 5:37 pm

jnk... wrote:
Sat Sep 22, 2018 5:14 pm
I believe that approximately 80% of PAP-machine unit sales by CPAP.com are APAPs, and only 20% or so are CPAPs. So in that sense, maybe . . .



Screenshot_2018-09-22-19-18-54.png
Probably the other way around at local DME's, especially those associated with HMO's.
When PATIENTS make their own choices, the right people win.

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Re: Doctor told me "some people just don't tolerate CPAP"

Post by ozzyluvshockey21 » Sat Sep 22, 2018 6:10 pm

chunkyfrog wrote:
jnk... wrote:
Sat Sep 22, 2018 5:14 pm
I believe that approximately 80% of PAP-machine unit sales by CPAP.com are APAPs, and only 20% or so are CPAPs. So in that sense, maybe . . .



Screenshot_2018-09-22-19-18-54.png
Probably the other way around at local DME's, especially those associated with HMO's.
When PATIENTS make their own choices, the right people win.
True, I had to jump through a lot of hoops to get a cpap with an auto feature this last time and that was just a few months ago.


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Re: Doctor told me "some people just don't tolerate CPAP"

Post by JayDee » Sun Sep 23, 2018 7:41 am

snarch wrote:
Sun Sep 16, 2018 12:48 am

I've heard before "the fastest way to get the right answer on the internet is not to ask the question but to post the wrong answer"
I've heard it said that if you have thin skin and/or read mal-intent into anything that is not "bedazzled" with flowery prose, then perhaps the internet is not the place for you. That being said, regardless of how you interpret directness, don't throw your baby out with the bathwater. The folks here can get you sorted in quick order.

I'm less than 4 months into CPAP and I can tell I'm sleeping better apnea-wise. I started off like you with miserably inadequate pressure settings. Here's all you really need to do:
1. Use your machine for a week (+/-) or so to build up some data.
2. Let the good folks here see your data.
3. Follow their advice.
4. Repeat steps 1 through 3 until you figure it out.

If you are lucky, they get you sorted on the first iteration. If you are normal, It may take a few iterations. If you can take some time to read through the forums, you should be able to learn fairly quickly what you need to do and should only need to (if you need the hand-holding) post your plan of action for review & "sanity-check" to make sure you accurately understood what you read.

I consider myself quite lucky as info gleaned from this forum had me sorted out pretty darn quick. You can do it too. This ain't rocket surgery.

And it may not be "set it and forget it". Your expectation should be that you may need to make mid-course corrections over time as your unique, personal variables change.

Good luck with it!
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