Sleep Study Questions

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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DocRon
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Sleep Study Questions

Post by DocRon » Wed May 22, 2019 1:35 pm

I have snored my whole life. I didn't get diagnosed / treatment for sleep apnea until I was in my late 40's. I am 75 years old now. (I'm male, retired, and living a somewhat sedentary life, not significantly over weight, maybe by 15-20 pounds) I used my cpap regularly until just a few years ago when I felt like it was interfering with my ability to sleep through the night. I have had some cardiac and pulmonary (pulmonary hyper tension) related health issues which have prompted me to seek better medical care including having a new sleep study done. I was completely shocked to see the report that said I did not have any sleep apnea at all. My family has videos of me struggling to breathe in my sleep. A family member suggested I turn to this forum for some advice. I find it odd that there appears to be information missing in the report and that everything is at '0' zero. How have I gone from having life long somewhat severe sleep apnea to none at all? I do not get restful sleep. I take several naps during the day and often nod off if I sit still too long. My oxygen levels are low all the time (high 80's) and I am being evaluated for treatments related to that and the pulmonary hyper tension. I was wondering if any of you could tell me if this report looks or sounds right? I am continuing to use my cpap right now because it does feel like it helps me breathe. I just don't understand how I've been treated for sleep apnea for so long and now it just suddenly disappears. I don't understand why the report is missing information and everything is zero. My wife tried to call the sleep doctor but got nowhere.

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Last edited by DocRon on Wed May 22, 2019 6:46 pm, edited 2 times in total.

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palerider
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Re: Sleep Study Questions

Post by palerider » Wed May 22, 2019 6:22 pm

DocRon wrote:
Wed May 22, 2019 1:35 pm
I was completely shocked to see the report that said I did not have any sleep apnea at all. My family has videos of me struggling to breathe in my sleep. A family member suggested I turn to this forum for some advice. I find it odd that there appears to be information missing in the report and that everything is at '0' zero. How have I gone from having life long somewhat severe sleep apnea to none at all?
Because false negatives happen fairly frequently with sleep studies.

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Pugsy
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Re: Sleep Study Questions

Post by Pugsy » Wed May 22, 2019 6:25 pm

Did you by chance use your cpap machine right up to and including the night before you had this in lab sleep study?

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DocRon
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Re: Sleep Study Questions

Post by DocRon » Wed May 22, 2019 6:45 pm

Pugsy wrote:
Wed May 22, 2019 6:25 pm
Did you by chance use your cpap machine right up to and including the night before you had this in lab sleep study?
Yes I did. Can this cause a problem?

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Pugsy
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Re: Sleep Study Questions

Post by Pugsy » Wed May 22, 2019 7:02 pm

There is something called a "holdover effect" that sometimes when people have been on cpap for years that they get a little help if they go without cpap so that the airway doesn't collapse as much for a handful of nights.
It's a possible explanation for your lack of events but zeroes all the way across is really unusual...even normal people who don't have OSA will have a random event of some sort.
Some sleep docs will tell people to not use their cpap for 3 to 5 nights prior to the diagnostic sleep study just in case there is going to be any hold over effect happen. Doesn't always happen to everyone but it happens enough that some docs will tell people to not use cpap for a few nights...at least one.

Don't know that is what happened with you...but it's possible.

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colomom
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Re: Sleep Study Questions

Post by colomom » Wed May 22, 2019 8:01 pm

I don't consider myself an expert so take my opinions with a grain of salt.
That said my son has sleep apnea and after pouring over his 5 sleep studies in the span of 2 years, I hope I can offer you some incite into understanding a sleep study report.

Where was the sleep study done? The report makes no sense to me. The notes to me seem to be in broken English and many data fields are blank.
For example:
The notes state that "the study reveled significant respiratory abnormalities during sleep in addition to snoring and oxygen desaturation"
It then backs this claim up with by saying you had "0 sleep disordered breathing event"
How can you have significant respiratory abnormalities and yet have no events? Your AHI was apperantally 0.0 which according to the report is somehow both "significant" and at the same time "no significant".
It says your O2 desats are concerning, but who knows what that means since the report lists you lowest desat as ? %.

I agree with your family members concerns, in my opinion there are MANY blaring errors in your sleep study report that should cause you to question the conclusions. Keep after them, and consider filing a complaint. If I were in your shoes I would be looking for a second opinion from a different provider.

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Re: Sleep Study Questions

Post by zoocrewphoto » Wed May 22, 2019 8:54 pm

To me, it looks like the report is incorrect. Somebody else mentioned some of it. But as an example, it is blank % for the lowest desaturation, BUT, it also says it went below 89% for 47.2 minutes. It is also blank where it supposed to state the lowest desat (which has to be below 89%).

It also refers to sleep disorderedbreathing events being noted in both NREM and REM, and in all body positions. So, clearly they cannot be zero.

It's like somebody forgot to type in the numbers for the report.

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DocRon
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Re: Sleep Study Questions

Post by DocRon » Sat May 25, 2019 5:36 pm

Thank you so much for the feedback! We are going to contact the doctor. This report just can't be right.

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peelunkins
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Re: Sleep Study Questions

Post by peelunkins » Sun May 26, 2019 11:53 am

DocRon wrote:
Sat May 25, 2019 5:36 pm
Thank you so much for the feedback! We are going to contact the doctor. This report just can't be right.
Looks like the MD recommends O2 at 1 liter at night for the desaturation