Bobo97272 wrote: ↑Sun Dec 24, 2023 11:38 pm
@ozij:
So you have a cardiologist. How long has he been treating you? Known the details of you heart's condition? What do you mean by "pointed out"?
[...] He left me with the impression unless the pattern is reported and analyzed on "his hospital's" equipment he considered it (OSCAR and Resmed) a consumer toy, much like a smart watch reporting oxygen and sleep stages.[...]
I think the two of you may be having a real mis-communication problem.
Nobody in their right mind treats ResMed's reports as systems for reporting either oxygen saturation or sleep stage. Nor is it a diagnostic machine.
On the other hand, if the doctor put you on APAP, he must trust the machine's basic ability identify your air flow and to respond to it.
If you were trying to use the machine's data to confirm a
diagnosis of anything from either doctor, now wonder it didn't work.
([...] his counter was that FDA approves it for safety, but FDA makes no claim that home based machines are reliable medical diagnostic tools - they are treatment tools not diagnostic. I realized that I was in over my head, and did not push this any farther)
He's right. And all you see on the machine's report is treatment emergent central sleep apnea, which, as it's name hints emerges only when you're using CPAP, and if Rubicon's image is from your data, it shows the TECSA emerge only when your pressure is very high.
@ozij:
Did the home sleep studies study your breathing while you were on CPAP?
I seem to recall that the 2020 home sleep study had a nasal cannula, but there may have been some doubt about it accuracy because I tend to mouth breath when really relaxed. I know for a fact the the home sleep study done Dec 2022 did not have anything to measure my breathing/air flow (no mask, no cannula)
In other words, both sleep sudies did not use Continuous Positive air pressure the therefore had no way of showing the occurence of TECSA.
@ozij:
The sleep doctor who put you on an APAP can't seriously distrust ResMed's ability to track you breath flow.
The sleep doctor (pulmonologist) seems to have no problem "believing" the AHI values that HE gets from Resmed's cloud (or I should say that's where I "think" he gets them) He told me that none of the data that he gets from Resmed's Airview say anything about "pattern breathing" or CSR. (So, apparently his view is if the data doesn't come from Resmed Airview, it is suspicious)
resmed about Airview wrote:Access detailed data at your convenience. Online data reports provide up to 365 days of therapy data and up to 90 days of detailed data, so you can take a comprehensive look into your patient's therapy and progress whenever you need them.
Your detailed airflow data is only there for the last 90 days (for the doctor) He won't see the flow and its patterns after 90 day.
Bobo97272 wrote: ↑Sun Dec 24, 2023 11:38 pm
I've observed them sporadically after I started with CPAP two years ago, and they have continued sporadically up to and after my last sleep study a year ago,
If they're sporadic maybe you doctor doesn't get to see them on the detailed data, when he views it and maybe they're that sporadic that they're a non-issue.
Did you have any such occurrences within 90 days of your meeting with the sleep doctor?
How often is "sporadic"? At which pressures?
I would sure hope that after two+ years of CPAP use (at 98% compliance) my system would have become used to CPAP.
That rather depends on how frequently your APAP is driven the heights of pressure that induce TECSA. Maybe it so rare that you never can get used to it - and don't have to because
Rubicon wrote: ↑Mon Dec 25, 2023 12:57 am
the algorithm started chasing something (probably inappropriately- might be fixed FL)
Meaning: it could be your machine was reaching those heights for no good, fixable reason. The "flow limitations" that cause the machine to zoom for some people are not caused by anything higher pressure can change.
Who set up your pressure parameters, and when?
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery
Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023