Went back and read some of your previous posts to try to get a feel for your situation. If what I say here is redundant, I apologize as I didn't read every post. Though being on meds can complicate the story as some can cause side effects, in general, pinpointing all one's sleep issues can be a lon...

So far, day 3 Of Xywav. No bad side effects. But no improvement in daytime sleepiness.

Just wanted to update all my friends on here where things are at. I am on day three of XYWAV (i was diagnosed with Ideopathic Hypersonia). I finally got it approved. At current, I am in bed most of the day or on the couch. It is physically hard to sit up or stand up. It's hard to stay awake for mos...

Thanks all <3 happy holidays.

Just wanted to update all my friends on here where things are at. I am on day three of XYWAV (i was diagnosed with Ideopathic Hypersonia). I finally got it approved. At current, I am in bed most of the day or on the couch. It is physically hard to sit up or stand up. It's hard to stay awake for most...

don't know if the recent development of my sleepiness issues becoming almost disabling is a natural progression of an underlying disorder or a traumatic response. I really don't know. You and my family think the latter. Seeing a parent decline is sad. Frightening even terrifying at times; exhaustin...

I could be very very wrong, but I'm thinking that nights plagued by tinitus - horrible as they are - may be preferable to you than nights plagued by thoughts of what is happening, and what is going to happen to your mom as her disease progresses. You're in a panic Billy, really jumping around docto...

I am calling my cardiologist this morning. Should I be concerned? https://www.dropbox.com/s/iyojpj0hi5krto2/cheynestrokesrespiration.jpg?dl=0 No. Now, if your entire night looked like THIS: http://i.imgur.com/drWZCTfl.png Then yes, call your cardiologist IMMEDIATELY. (That was from my late brother,...

It's certainly a good idea to talk with your cardiologist and your pulmonologist. While you'll want to discuss the flagged breathing, I think the bigger issue is that your sleep problems are causing you to go onto disability. Please be clear with them that things are that bad. You need more help th...

It's certainly a good idea to talk with your cardiologist and your pulmonologist. While you'll want to discuss the flagged breathing, I think the bigger issue is that your sleep problems are causing you to go onto disability. Please be clear with them that things are that bad. You need more help th...

Julie wrote: ↑

Thu Dec 01, 2022 1:59 pm

Sure it's probably a silly question, but have you ever been to Africa... been bitten by a Tse-se fly? Been asked that before?

Hi Julie <3

Never have been to Africa. I've had a litany of blood tests from my PCP. They can't seem to figure it out.

It's certainly a good idea to talk with your cardiologist and your pulmonologist. While you'll want to discuss the flagged breathing, I think the bigger issue is that your sleep problems are causing you to go onto disability. Please be clear with them that things are that bad. You need more help th...

Here is a more zoomed-out view. It was after going to the bathroom. I often have sleep/wake/transitional Centrals. I called my pulmonologist's office. Waiting to hear back.

https://www.dropbox.com/s/nyr4i238g4iri ... M.png?dl=0

I am calling my cardiologist this morning. Should I be concerned? https://www.dropbox.com/s/iyojpj0hi5krto2/cheynestrokesrespiration.jpg?dl=0 During the time flagged in green I had just taken an Ambien. My sleep problems have become so severe that I am going on disability. I cannot function during t...

Well. I’m making the decision to apply for disability. Sadly I do not have the energy to even take care of myself. Let alone work my 40 hour a week job. I can’t understand how an army of sleep medicine doctors and psychologists can’t help me. It’s shocking. In a short 2 years I have become effective...