New CPAP USER and swelling of ankles/feet

[skeeterz71]

Just a quick follow-up. So I was without a cpap for a couple days. My feet and ankles and calves did not swell those 2 days. I got up and urinated two or three times a night. I got my new hose and started using the cpap again. My feet ankles and calves have started swelling again. I see the Dr. Tuesday. I'll follow up here.

[purple22]

Put it another way, early treatment of cardiovascular problems can prevent long term damage. Much long term damage means you have to live with really limited life quality, maybe even death. At least it is much harder to treat. Don 't mess around, it is heart or kidneys. Only really first rate testing reveals the true depth of the problem. If the doc just gives you a diuretic, water pills, and does not immediately send you to a Cardiologist, or someone who does kidney things (Urologist, Nephrologist) then forget him and run to a Cardiologist. IF your insurance requires a referral, and your primary will not give it at first interview, tell him you will get it at ER. Then follow through. By The Way. A resting EKG is not test to much determine exact future treatment, it mainly shows whether you have had a heart attack already. Often with first suspicion it is done so that if you go the ER, they have an earlier EKG to compare it too. Quality of life is what you want to have, to keep. Early Diagnosis and treatment is needed for heart-vascular problems.

[chunkyfrog]

If you let the doctor make you wait--by the time they see you, it could be TOO LATE.
HMOs do it all the time to kill off costly patients. TRUTH.
You may need to fight for your life. Get aggressive, while you still can.

[skeeterz71]

@palerider 15cm/h2o, 15PSI would cause you to explode all over the walls and ceiling.

My bad. 15 cm.

[skeeterz71]

@chunkyfrog. VA. Cardio doc is in the works. They tend to move at snail pace. My general doc I will see Tuesday is pretty smart. Everything goes through him.

[whitehouse395]

I started using a CPAP about three months ago. I sleep in a cold room and couldn't used the humidifier because it caused condensation in the hose and I felt like I was drowning. For the three months I've been using it, I had no swelling of my face, hands, and feet. Last week I saw my CPAP therapist and he gave me a heated hose so I could use the humidifier. Ever since I got this heated hose, I wake up every morning with my face feeling like it's swollen, and my hands and feet are so swollen I can't bend my fingers and my feet feel tight. I turned off the heated tube and the humidifier but that didn't change anything. I'm sleeping without my CPAP tonight to see if that helps. If it does, I'm going back to the old hose and see what happens with it. I'll let you know the results.

[Bill44133]

Its funny that this post should show up. I am having the same issue. the last couple of weeks it shows up 4 or 5 times a week.

My Doctor appointment is this week I will find out. I have been off the water pills since 2015 after being on them for many years. It maybe time to change medicine again.

I have been on this therapy since 2013 so i know that is not causing the issue.

[sarahgise05]

Hi all! I posted this on another thread, but since it’s being discussed here I wanted to see if anyone had any luck with treating the swelling/pain that was caused or made worse by the CPAP. Would love to hear from the people who were experiencing similar symptoms before. Here is the original post:

Hello! I'm posting here as I'm at something of a loss, and I'm not sure where else to turn. I'm posting on behalf of my mother, who's been very ill with a slew of conditions (diagnosed sleep apnea being one of them) for many years. Her health has begun to decline even further, which has spurned me to try and find new avenues to help her.
My mom has had a slew of health problems since she was diagnosed with Hodgkins Lymphoma stage 4 over 16 years ago... she hasn't had the cancer come back, thank goodness, but currently we (and our doctors) are a bit stumped by her current condition. A few years ago my mom was diagnosed by a sleep specialist with "the most severe sleep apnea [he's] ever seen" and said that she's probably had it for years and that's why her chronic fatigue has gotten so bad. They put her on the CPAP, and she definitely showed some improvement. But 5 days in, she started experiencing pain and swelling in her joints. The doctors said a little swelling at first is normal, but after at least 6 months it still hadn't gone away... and was getting worse. It is similar to Rheumatoid Arthritis symptoms, but they were only triggered when she used the CPAP. She had never had these symptoms in her life before this. They tried her on the BIPAP and a dental device for sleep apnea, but the BIPAP caused the same problems and the dental device just plain didn't work. The Cleveland Clinic diagnosed her with Dysautonomia, but that's mostly an umbrella term for malfunction of nerve systems, and there's not necessarily a "treatment" except to find the underlying causes. Honestly from my perspective she seems to be fading away, sleeping more and more (without air because of the sleep apnea). At this point, as of about 6-8 months ago, she's no longer able to even leave the house. We're extremely concerned obviously. Currently they are having a Palliative Care nurse come visit her to prescribe medications, as she's unable to go in for doctors visits. Our current plan is to get the pain under control so she can use the CPAP again until we find something else that helps with her sleep apnea. My instinct is to take her to the Mayo Clinic (she went there for the pain management program in 2006), but we're worried that even if we're able to get her all the way from Texas to one of their locations, that they won't be able to help her. I'm wondering if anyone has experienced something similar to RA symptoms while on the CPAP, and/or if someone is able to point me in the right direction of someone who can help. She certainly has a complicated case, but any input at this point is more than welcome!
Thanks in advance for anything you can offer!

[Julie]

Hi - so sorry to hear about your mother, but having read her history would only advise you to stay with her doctors' advice and not try to make Cpap a major factor now. She has serious problems (of course) and cpap is the least of them, plus she's obviously being followed by specialists who will be able to help more (if possible) than anyone here, none of us being doctors. I hope things turn around for her (and you).

[Cassika]

I have dealt with this exact problem for years. I've always chalked it up to not getting up 4+ times in the middle of the night to pee. I've mentioned it a few times to my doctor, but nothing has come of it. I'm finally here because the swelling keeps getting worse and I'm quite frankly tired of it. It's painful. I'm hoping someone will be able to update, so hopefully we'll have a clue.

[chunkyfrog]

I have dealt with this exact problem for years. I've always chalked it up to not getting up 4+ times in the middle of the night to pee. I've mentioned it a few times to my doctor, but nothing has come of it. I'm finally here because the swelling keeps getting worse and I'm quite frankly tired of it. It's painful. I'm hoping someone will be able to update, so hopefully we'll have a clue.

Be a pest. The squeaky wheel gets the grease.
You need to see a specialist.
Ask for a referral--no, INSIST on a referral!
Your life may depend on it.
Edema of the feet and legs is DEADLY SERIOUS.
It could be a side effect of some medications or CHF. (congestive heart failure)

[Wulfman...]

I have dealt with this exact problem for years. I've always chalked it up to not getting up 4+ times in the middle of the night to pee. I've mentioned it a few times to my doctor, but nothing has come of it. I'm finally here because the swelling keeps getting worse and I'm quite frankly tired of it. It's painful. I'm hoping someone will be able to update, so hopefully we'll have a clue.

Look it up:

https://duckduckgo.com/?q=edema&t=ffhp&ia=web


Den

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