Husband says I'm choking? MyAir score 98? Sleepyhead Sat 4/14

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palerider
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Re: Husband says I'm choking? MyAir score was 98? Sleepyhead update :)

Post by palerider » Tue Apr 10, 2018 12:08 pm

I'd also increase the minimum pressure to 11, with EPR on, it's dropping your lowest pressure to 6, and that's too low for you.

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Re: Husband says I'm choking? MyAir score was 98? Sleepyhead update :)

Post by pugdreams » Wed Apr 11, 2018 4:43 am

Changed range to 9-20 last night as recommended (i thought i had raised that min but I guess I didn't?). But my AHI was higher last night, with two "CAs" which I didn't notice before (though that first one I was likely still awake). I'm using the old Swift FX for her with the heated hose that I got when I got the Dreamwear full face mask - does that matter? This hose swivels and I feel like it pulls on the mask more because of that - but I might just be grasping at straws as I really was hoping for better results last night. Though I did keep the mask on all night, took it off and turned off the machine to go to the bathroom at about 2am. Adjusted the humidity then too (lowered) as it was again making a sort of sputtering sound, but kept it on. I feel pretty ok this morning. I may try the full face mask tonight before I return it - I haven't tried it at these new settings. If I do return it, I will try a new nasal pillow mask.

I'm sorry for being a pest - am I right to keep to this thread? I figure I shouldn't start a new thread because it's the same topic, right?

Kara
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Tues 4/10

Post by Pugsy » Wed Apr 11, 2018 5:58 am

Yes..keep to this thread..even if it gets a bit long it's easier than trying to remember what was said in other threads and easier than trying to go read other threads and combine them in our heads.

Increase your minimum pressure tonight...try 10 and see what happens...might need 11 but I like to go up slowly...because sometimes we get lucky and don't need as much as we might first have thought.

Ignore the centrals..real or not we can't do anything about them with this machine and you aren't having enough of them to alarm anyone even if ever single one of them was real which I am fairly sure they aren't all real anyway.

The bulk of the AHI (and OAs) that you don't like is happening in those wee hours of the morning where we typically have more REM.
You just need a little bit more minimum during those time. You might be on your back but same difference...need more minimum.
My bet...REM is causing your OSA to be just a little harder to deal with and you need a little more pressure.
My OSA is 5 times worse in REM and I often used to see those clusters in the wee hours of the morning...that's when people typically have the greatest amount of REM. Very common and no big deal. We just have to find a minimum that gives the machine the best head start for dealing with the extra difficult REM stuff.
Sleeping on your back will do the same thing...make the OSA worse or need more pressure.

It's either more minimum or reduce EPR...and if you like EPR just increase the minimum. Your choice.
Me personally...I like EPR and I would especially like it if my minimum was in the double digits but some people prefer less EPR or no EPR.

How is EPR maybe impacting things...that drop during exhale has the potential to lessen the ability of the pressure to hold the airway open and the airway will try to collapse. It's not always a given though that EPR is letting the events slip past the defenses. It can happen even if EPR wasn't being used.
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Tues 4/10

Post by Pugsy » Wed Apr 11, 2018 6:01 am

The new hose isn't a factor in the AHI. Doesn't matter what hose you used...unless the wrong diameter was chosen and if the heated hose is attached the machine automatically makes the correct diameter choice for you.

Continue with the Swift FX pillows for now.
I am afraid if you try to use the full face mask right now you will need even more minimum.
Revisit the FFM later once you have things better dialed in with the Swift FX.
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Tues 4/10

Post by pugdreams » Wed Apr 11, 2018 6:14 am

THANK YOU, THANK YOU both! I will raise that minimum tonight, stick with the Swift FX and see how tonight goes. I actually feel ok, and awake this morning and that's good. :) I have to remind my self that even this AHI is a HUGE improvement on my untreated 61 AHI, right?! :) I was initially on another forum (which you might also be on Pugsley?), but it's not nearly as active as this one. Still helpful, but I really needed more immediate help - so again, thank you for your insight and help.

Kara
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Tues 4/10

Post by Pugsy » Wed Apr 11, 2018 6:22 am

Yes...I saw you on the other forum...that's Jason's freecpapadvice.com forum. No not quite as active but still a nice place to visit and have some fun. The atmosphere here isn't everyone's cup of tea so it's a nice alternative. We have several forum members from here who are active over there.

I didn't answer your question over there because I thought my answer here was sufficient and you seemed to have read it here.
I saw no sense in posting same stuff twice unless you didn't come back here.
Though I probably should have...just in case someone else new happened upon your thread with same issues but there are only so many hours in the day for me to do this stuff and I just don't have the time to post duplicate information in both forums unless I just absolutely have to.
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Tues 4/10

Post by pugdreams » Thu Apr 12, 2018 5:21 am

Ok. So this is better, right? I swear I had increased the min to 10, but it doesn't look like it here. I took the mask off for a bit in the middle of the night to go to the bathroom and must have started to fall back to sleep, but I did put it back on (yay!). I woke up at 6am, took the mask off but fell back to sleep for an hour. :) But overall, what do you experts think? Thanks, Kara
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Wed 4/11

Post by prodigyplace » Thu Apr 12, 2018 5:42 am

I have seen Sleepyhead not catch settings changes right away.
My theory is that CPAP measures a day from noon to noon. It you change a setting after noon it may not show in Sleepyhead until the next day. I have not tested that theory though.

Are you feeling more rested? It is good to see the AHI lower. I am by no means an expert though. Still a newbie after a little more than a year on CPAP.

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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Wed 4/11

Post by pugdreams » Thu Apr 12, 2018 5:48 am

I'll tell you after my coffee. No, kidding aside. I felt really good yesterday - like AWAKE all day long. I'm a little tired today but I haven't gotten going yet. Overall I do feel ok though.
Kara
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Wed 4/11

Post by Pugsy » Thu Apr 12, 2018 7:00 am

It's definitely at 9 cm minimum but looks like with the max raised to 20 cm that the machine could keep up better.
I don't know that 10 cm is necessarily critically needed unless you just want to try it....which I would probably do if it were me but I would also want more nights with the max at 20 using this 9 cm and see if I could duplicate last night with 9 min.

You may have accidentally not got the change made during the change to 20. For some reason maybe the knob got bumped or something.
I have done it but not with the pressure so much. I accidentally changed the calendar date itself once when I was changing the clock because of DST.
Moved it forward 1 day by mistake...made real mess of things.
I rarely bother changing the clock now...once burned twice shy kinda thing. :lol:

It is 9 though...and has nothing to do with anything except that's where it is set. Doesn't matter what time of day you make a change and it doesn't have anything to do with SH or how the machine reports stuff or the noon to noon stuff.
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Tues 4/10

Post by palerider » Thu Apr 12, 2018 12:37 pm

pugdreams wrote:
Thu Apr 12, 2018 5:21 am
Ok. So this is better, right? I swear I had increased the min to 10, but it doesn't look like it here. I took the mask off for a bit in the middle of the night to go to the bathroom and must have started to fall back to sleep, but I did put it back on (yay!). I woke up at 6am, took the mask off but fell back to sleep for an hour. :) But overall, what do you experts think?
While, like Pugsy says, it's not critical, but I'd still say go for a higher minimum, 10, might need 11. that higher base will cut down on the events you have when the machine lowers the pressure back down to the minimum that it's set for.

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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Wed 4/11

Post by Pugsy » Thu Apr 12, 2018 12:50 pm

Just to be clear...I would still try the 10 and maybe 11 minimum at some point...but I would also give the new 9 min and 20 max settings more time also unless it happens that this good report at 9 was just a fluke. I wouldn't be so quick to give up on 9 maybe doing a good job.

I once decided to increase the minimum to see just how much it affected either my reports or my sleep.
Back then I was using a Respironics apap and had to start with a 10 cm minimum to keep the OA REM clusters broken up into small chunks.

So over a period of several weeks I increased the pressure minimum by 0.5 cm weekly...left it for a week...then another 0.5 cm for another week..up to finally 13 cm minimum (max was always 20)...so maybe 6 to 8 weeks total experiment time.
End result..the 10 cm was about as good as I ever got both in terms of AHI and sleep quality. The AHI never really changed...even at a week at 13 minimum.
Yeah some minor nightly variations but never anything really big or earth shattering.

So I went back to 10 minimum since I had not found any reason or benefit to use a higher minimum.

Never hurts to try a little more and see how things go (unless maybe it triggers aerophagia or something) and you learn something.
And as long as using more doesn't create problems...doesn't hurt to maybe use more than is technically needed on paper to get desired results. Problems from more pressure...not really all that common for most people.

Don't ever go changing things based on one night unless you make a big change with a big and disastrous result.
We will all experience nightly variations in everything...AHI, hours of sleep, sleep quality.
And if we go changing things nightly....we would be forever chasing our tails.
Expect minor variations even if you change nothing because it's normal.
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Wed 4/11

Post by pugdreams » Fri Apr 13, 2018 4:31 am

Ok. So I promise I won't post every morning but your feedback is greatly appreciated while I get this whole thing figured out. Last night it looks like a leak woke me up - got up to go to the bathroom and fell asleep without the mask on. Then put it back on at 5 I think? But never really fully fell asleep. I DID raise the min pressure to 10 and for the time that I had the mask on, it looks ok, right? I lowered the humidity too because of condensation. I was congested in the middle of the night too. Might try that navage I've seen people mention.

Kara
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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Thur 4/12

Post by prodigyplace » Fri Apr 13, 2018 5:36 am

For condensation issues in the hose, a heated host helps immensely.

https://www.cpap.com/productpage/resmed ... ve-10.html

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Re: Husband says I'm choking? MyAir score 98? Sleepyhead Thur 4/12

Post by Pugsy » Fri Apr 13, 2018 7:18 am

Yes...for the time you did have it on it looks great. Good job.

Bad girl for laying back down without the mask being on.... :lol: :lol: :lol:

Even now after 9 years of therapy...the mask goes on before I ever lay down in bed. It's too easy to think....I will lay here just a minute and then put the mask on....and you go off to sleep before putting it back on.

Make a habit....no laying down without mask being on.
I may have to RISE but I refuse to SHINE.