yearning 4zs therapy -- not going well!

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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palerider
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Re: strange flow rate waveform question

Post by palerider » Mon May 20, 2019 11:28 pm

yearning4zs wrote:
Mon May 20, 2019 11:11 pm
palerider wrote:
Mon May 20, 2019 10:17 pm
yearning4zs wrote:
Mon May 20, 2019 10:10 pm
palerider wrote:
Thu May 16, 2019 1:16 am
yearning4zs wrote:
Thu May 16, 2019 12:48 am
looked more like this. I would say overall I feel worse on the new machine.

edit: I had a resmed 10 for her before as well, but it was a rental. Perhaps had been used longer?
I see the same artifacts in that trace..

I think as you scroll through the night, you'll see variations... what you don't have is a nice smooth exhalation... you're seeing the cardiac effects in that, and it just depends on *when* you inhale in or out of time with your heartbeat determines what kind of strange shape the top of your inhalation curve looks like.

Are the settings on the new machine the same as the old one?
I raised my pressure to 8.6 high - 6 low for a few nights with no great benefits. I'm wondering if, like another user suggested, turning off the epr or putting it down lower might help with stenting on exhalations? Seeing as it appears my exhalations are uneven.
What do things look like when you're NOT having huge leaks?

EPAP (the exhale pressure) is what keeps your airway open... so, if the pressure drops too there, you'll have problems.
If you take out the cardiogenic affects, I don't really see anything wrong with your exhalations.

You can add more pressure and see if that gets your hypos down (it should help).

Here is a fairly representative snippet from the same night when there was relatively little leakage. Is this what you're looking for or should I provide more data?

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Re: strange flow rate waveform question

Post by yearning4zs » Tue May 21, 2019 12:03 am

palerider wrote:
Mon May 20, 2019 11:28 pm
yearning4zs wrote:
Mon May 20, 2019 11:11 pm
palerider wrote:
Mon May 20, 2019 10:17 pm
yearning4zs wrote:
Mon May 20, 2019 10:10 pm
palerider wrote:
Thu May 16, 2019 1:16 am

I see the same artifacts in that trace..

I think as you scroll through the night, you'll see variations... what you don't have is a nice smooth exhalation... you're seeing the cardiac effects in that, and it just depends on *when* you inhale in or out of time with your heartbeat determines what kind of strange shape the top of your inhalation curve looks like.

Are the settings on the new machine the same as the old one?
I raised my pressure to 8.6 high - 6 low for a few nights with no great benefits. I'm wondering if, like another user suggested, turning off the epr or putting it down lower might help with stenting on exhalations? Seeing as it appears my exhalations are uneven.
What do things look like when you're NOT having huge leaks?

EPAP (the exhale pressure) is what keeps your airway open... so, if the pressure drops too there, you'll have problems.
If you take out the cardiogenic affects, I don't really see anything wrong with your exhalations.

You can add more pressure and see if that gets your hypos down (it should help).

Here is a fairly representative snippet from the same night when there was relatively little leakage. Is this what you're looking for or should I provide more data?

Ok, I guess maybe I'll try 8.6 and 6.4 and bring my erp down to 1. See if a little extra pressure on the exhale will help me.

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Re: strange flow rate waveform question

Post by yearning4zs » Tue May 21, 2019 4:48 am

I wonder if I shouldn't just start a new thread, as this thread is basically becoming my personal therapy thread...

Another question I have is, I'm wondering if I should consider the possibility of UARS? Never came up in my DISE or first sleep study, but we all know how that goes. I've included a picture here where there appears to be some perturbation following a small flow limit. Not sure if this looks like an arousal?

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zonker
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Re: strange flow rate waveform question

Post by zonker » Tue May 21, 2019 10:55 am

yearning4zs wrote:
Tue May 21, 2019 4:48 am
I wonder if I shouldn't just start a new thread, as this thread is basically becoming my personal therapy thread...
edit the title of your post and carry on from there. "yearning4zs therapy thread" or some such. it helps the experts here to keep track of you and your concerns if you stick to one thread.

good luck!
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palerider
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Re: strange flow rate waveform question

Post by palerider » Tue May 21, 2019 1:03 pm

yearning4zs wrote:
Tue May 21, 2019 4:48 am
I wonder if I shouldn't just start a new thread, as this thread is basically becoming my personal therapy thread...
No, just change the title.
yearning4zs wrote:
Tue May 21, 2019 4:48 am
Another question I have is, I'm wondering if I should consider the possibility of UARS? Never came up in my DISE or first sleep study, but we all know how that goes. I've included a picture here where there appears to be some perturbation following a small flow limit. Not sure if this looks like an arousal?
Looks like it might be a bit of one.

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yearning4zs therapy thread

Post by yearning4zs » Tue May 21, 2019 7:43 pm

Another night of seemingly unperturbed sleep, but waking up hypoxic (tension in head, slight dizziness), fairly strong heartbeat etc. Went back to sleep for another 3 hours without the machine and as per usual wake up feeling a little better. The chunk I show here, I can seriously say I don't remember waking up at all until this last part, where it seems maybe I was awoken by a central? At this point with zero hypos and zero oa do I still really need to the raise the pressure?
522.jpg
522.jpg (496.54 KiB) Viewed 2264 times
looks like all quiet on the western front.
522 typical.jpg
522 typical.jpg (451.36 KiB) Viewed 2264 times
Typical waveworms during the night
522 typical 2.jpg
522 typical 2.jpg (471.39 KiB) Viewed 2264 times
breathing patter at higher pressure seems to look a bit less stable on the whole.

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Re: strange flow rate waveform question

Post by palerider » Tue May 21, 2019 8:09 pm

Ok, if it were me, I'd set the min pressure to 8, and the max at 20... (as long as you're not suffering from painful bloating, don't restrict the max pressure), and see if we can't smooth out the pressure curve somewhat.

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Re: strange flow rate waveform question

Post by yearning4zs » Tue May 21, 2019 8:21 pm

palerider wrote:
Tue May 21, 2019 8:09 pm
Ok, if it were me, I'd set the min pressure to 8, and the max at 20... (as long as you're not suffering from painful bloating, don't restrict the max pressure), and see if we can't smooth out the pressure curve somewhat.
Ok, will bump it up tonight a little bit. Although it's still beguiling to me how with basically no ahi and no remembered awakenings I could feel that sort of lightheaded and "not right " in the morning. THe extra three hours off the machine seemed to help some.

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Re: strange flow rate waveform question

Post by palerider » Tue May 21, 2019 10:05 pm

yearning4zs wrote:
Tue May 21, 2019 8:21 pm
palerider wrote:
Tue May 21, 2019 8:09 pm
Ok, if it were me, I'd set the min pressure to 8, and the max at 20... (as long as you're not suffering from painful bloating, don't restrict the max pressure), and see if we can't smooth out the pressure curve somewhat.
Ok, will bump it up tonight a little bit. Although it's still beguiling to me how with basically no ahi and no remembered awakenings I could feel that sort of lightheaded and "not right " in the morning. THe extra three hours off the machine seemed to help some.
Well, I didn't remember anything when I had *BAD* apnea, other than having to get up and pee every hour or two all night long... but I wasn't sleeping... I was just passed out from exhaustion. We tend to not remember much that happens during the night.

Some folks have gotten a 25$ wyze security camera to record themselves sleeping, just to see how restless they are.

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Re: strange flow rate waveform question

Post by yearning4zs » Tue May 21, 2019 11:15 pm

palerider wrote:
Tue May 21, 2019 10:05 pm
yearning4zs wrote:
Tue May 21, 2019 8:21 pm
palerider wrote:
Tue May 21, 2019 8:09 pm
Ok, if it were me, I'd set the min pressure to 8, and the max at 20... (as long as you're not suffering from painful bloating, don't restrict the max pressure), and see if we can't smooth out the pressure curve somewhat.
Ok, will bump it up tonight a little bit. Although it's still beguiling to me how with basically no ahi and no remembered awakenings I could feel that sort of lightheaded and "not right " in the morning. THe extra three hours off the machine seemed to help some.
Well, I didn't remember anything when I had *BAD* apnea, other than having to get up and pee every hour or two all night long... but I wasn't sleeping... I was just passed out from exhaustion. We tend to not remember much that happens during the night.

Some folks have gotten a 25$ wyze security camera to record themselves sleeping, just to see how restless they are.
I did a titration last night and slept basically the same as today, so hopefully will give some indication...

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Re: strange flow rate waveform question

Post by palerider » Tue May 21, 2019 11:19 pm

yearning4zs wrote:
Tue May 21, 2019 11:15 pm
palerider wrote:
Tue May 21, 2019 10:05 pm
yearning4zs wrote:
Tue May 21, 2019 8:21 pm
palerider wrote:
Tue May 21, 2019 8:09 pm
Ok, if it were me, I'd set the min pressure to 8, and the max at 20... (as long as you're not suffering from painful bloating, don't restrict the max pressure), and see if we can't smooth out the pressure curve somewhat.
Ok, will bump it up tonight a little bit. Although it's still beguiling to me how with basically no ahi and no remembered awakenings I could feel that sort of lightheaded and "not right " in the morning. THe extra three hours off the machine seemed to help some.
Well, I didn't remember anything when I had *BAD* apnea, other than having to get up and pee every hour or two all night long... but I wasn't sleeping... I was just passed out from exhaustion. We tend to not remember much that happens during the night.

Some folks have gotten a 25$ wyze security camera to record themselves sleeping, just to see how restless they are.
I did a titration last night and slept basically the same as today, so hopefully will give some indication...
Btw, you need to change the topic in the *first* message of the thread.

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Re: strange flow rate waveform question

Post by djams » Wed May 22, 2019 5:26 am

yearning4zs wrote:
Mon May 20, 2019 7:10 pm
djams wrote:
Sat May 18, 2019 12:19 pm
If it's any consolation, I've seen the same sort of thing. Eventually discovered that for me, it was related directly to EPR. If I used EPR ON/3, I'd see these odd breath shapes. EPR/OFF - they go away. YMMV on this I'm sure. Even though I was told repeatedly here that it's harmless, it continued to bug me. So I learned to get by with EPR off.

Here's an example of mine.
20181121_irregular_breathing.PNG
That's really interesting. Did you find any change in your sleep and overall therapy after making that change?
Nope. :D Only real change was that I stopped seeing the artificially elevated respiratory rates in SleepyHead.

I went "cold turkey". But I was somewhere between 6 and 9 months into therapy. When I turned EPR off, I was astounded that I didn't find it the least bit uncomfortable. If it had been uncomfortable, good chance I wouldn't have changed it.

Quite honestly, If you find EPR comfortable - use it. It really helped me get settled in and sleeping better. Allowed me to gradually raise my min pressure to where it needed to be at the time.

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Re: yearning 4zs therapy thread thanks everyone!

Post by yearning4zs » Wed May 22, 2019 9:31 pm

I got my titration results back today. I will give a more detailed report later, but the first thing that really struck me is they said my ahi was 8 for the night when even on the very worst night at home I'm around a 1-2. Does this mean that there is something wrong with sleepyhead? Or something wrong with the scorer? Or is this common for other people too.?

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Re: yearning 4zs therapy thread thanks everyone!

Post by palerider » Wed May 22, 2019 10:14 pm

yearning4zs wrote:
Wed May 22, 2019 9:31 pm
I got my titration results back today. I will give a more detailed report later, but the first thing that really struck me is they said my ahi was 8 for the night when even on the very worst night at home I'm around a 1-2. Does this mean that there is something wrong with sleepyhead? Or something wrong with the scorer? Or is this common for other people too.?
Titration, with a machine? and they couldn't get your AHI under 8?

Sounds to me like your home machine works way better than their lab setup.

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Re: yearning 4zs therapy thread thanks everyone!

Post by yearning4zs » Wed May 22, 2019 10:56 pm

palerider wrote:
Wed May 22, 2019 10:14 pm
yearning4zs wrote:
Wed May 22, 2019 9:31 pm
I got my titration results back today. I will give a more detailed report later, but the first thing that really struck me is they said my ahi was 8 for the night when even on the very worst night at home I'm around a 1-2. Does this mean that there is something wrong with sleepyhead? Or something wrong with the scorer? Or is this common for other people too.?
Titration, with a machine? and they couldn't get your AHI under 8?

Sounds to me like your home machine works way better than their lab setup.
The whole thing seems off to me. But I'll have a closer look at the report when I get it.

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