Bad night

lpady · Post by **lpady** » Sun Apr 15, 2007 8:12 am

Ugh!

I hate RLS. It woke me at least twice last night and then the kids slept with me and my daughter was having nightmares. None of which helped. At least my AHIs remained at 2.3 and my 90% was 12.2 again. I did bring the range down to 9 to 14 from 9 to 18.

But, since I have to drive some distance today (an hour each way to a luncheon) I ended up taking my Provigil this morning. My legs still ache from last night. I have no idea why it would be so bad. Nothing stressing me out, etc.

Too bad there isn't a device for RLS like there is for apnea!

Hopefully tonite will be better - back to work tomorrow!

Linda

dieselgal · Post by **dieselgal** » Sun Apr 15, 2007 8:52 am

Actually when I started Cpap it did help my plmd. I use to suffer with RLS off and on (mostly caused by depression medication) and this has not been bothersome lately either.
I heard this one bit of wizardry that you might want to try even if it is just to disprove it. I read that if you are suffering from RLS that if you put a bar of ivory soap under the bottom sheet of your bed. That somehow helps! Have you heard this before and if not why not try it and please let me know if it works!

lpady · Post by **lpady** » Sun Apr 15, 2007 9:12 pm

dieselgal,

Never heard that one before (the Ivory soap) but I used to have my ex literally kick my legs to make them feel better. Maybe it was because I was in the hot tub yesterday? Who knows. I also know RLS is caused by lack of iron, stress, etc. Go figure, I'm anemic - and just got divorced and moved into an apartment 1/3 the size of the house we lived in with my 2 kids last summer. Hmmmm stress? Ya bet!

I've heard of drinking tonic water (quinine), etc. Don't want to start on the new meds cause there isn't enough data yet.

Heck maybe it was just plain too much caffeine yesterday. Hopefully tonite will be better.

What was really wierd to me was that my PLMD was WORSE after CPAP on my split nite study. 70+ on CPAP, 35 w/o. Can't figure that one out...

Linda

dieselgal · Post by **dieselgal** » Mon Apr 16, 2007 8:20 am

Please try the bar of ivory soap under the sheets because I am dying to know if it works!

lpady · Post by **lpady** » Mon Apr 16, 2007 8:24 am

OK - I'll try anything once... Although it sounds goofy to me :LOL:

JZ · Post by JZ » Mon Apr 16, 2007 8:44 am

Linda,

I don't have PLMD or RLS, but recently stumbled onto some discussion on the Internet about the home remedy of putting a bar of Ivory soap under the bottom sheet near your legs. It sounds totally goofy to me too. But if you want to see more, here is a link to a short article at a website called The People's Pharmacy.

http://www.peoplespharmacy.com/archives ... cramps.asp

I'm not a healthcare professional, and I am not recommending the Ivory soap. I just wanted to provide more information in case you are interested.

Good luck to you.

Janna

SleepingBeauty · Post by **SleepingBeauty** » Mon Apr 16, 2007 10:08 am

The bar of soap really works. No kidding.

My father used to wake with leg cramps all the time. They read about the soap thing, had a good laugh about it, and thought, well, what the heck, we'll try it.

My dad had no leg cramps at all the first night. They thought it was power of suggestion or something, but Mom kept putting the soap under the sheets and he continued to have peaceful nights.

Then one night he woke up with horrible leg cramps again. He asked my mom if she forgot the soap. She said she didn't. Dad suffered through the night. The next morning, when my mom went to make the bed, she found the soap on the floor.....it had fallen out of the sheets during the night.

I don't know if having the soap there makes you move your legs more often because of the bump in the bed, or what. I just know my parents will vouch for its effectiveness. And they started out as total skeptics.

Janine · Post by **Janine** » Mon Apr 16, 2007 12:02 pm

That is absolutely bizarre! I am trying it tonight!!!

WearyOne · Post by **WearyOne** » Mon Apr 16, 2007 12:27 pm

All right, another RLS suffere here. Please let me know about the soap!!

I also use a heating pad on my legs, which helps. Also, you might want to try "Leg Cramps" by Hylands. It's a homeopathic pill that has quinine in it. It's for leg cramps, but I've used it for RLS because of the quinine content, and it seems to help some.

Pam

lpady · Post by **lpady** » Mon Apr 16, 2007 12:33 pm

OK - like the article said - a bar of soap is a lot less than a prescription (and not addictive either like the meds I'm on) so what the heck. I figure although it's totally bizarre and it may be the placebo effect, I'll at least give it a try.

Snoredog · Post by **Snoredog** » Mon Apr 16, 2007 12:51 pm

WearyOne wrote:All right, another RLS suffere here. Please let me know about the soap!!

I also use a heating pad on my legs, which helps. Also, you might want to try "Leg Cramps" by Hylands. It's a homeopathic pill that has quinine in it. It's for leg cramps, but I've used it for RLS because of the quinine content, and it seems to help some.

Pam

I have a bottle of that too, I tried it once after my stroke, appearently the cramps I was having was from the hypertension medication DivovanHCT, once I went off that leg cramps went away.

FDA has since banned the use of quinine even in supplemental products, it used to be used to treat malaria:

http://www.fda.gov/bbs/topics/NEWS/2006/NEW01521.html

Didn't SAG make note of your EKG?

Quinine drugs are associated with serious side effects, such as cardiac arrhythmias, thrombocytopenia (a decrease in blood platelets that can cause hemorrhage or clotting problems), and severe hypersensitivity reactions. There is also the potential for serious interactions between quinine drugs and other drugs, and there are conditions under which quinine should not be used.

lpady · Post by **lpady** » Mon Apr 16, 2007 2:30 pm

WOW - Quinine banned by FDA, huh??? No wonder I am distrustful of the medical profession -- my doctor told me I should try Tonic Water because of the Quinine content! I had asked about Requip since I'm currently taking Klonopin and don't like that it can be addictive/habit forming which means it will eventually I will need to take more to have the same effect.

I know that when it's really bad I'll take a bath in the hottest water I can stand and that helps -- I'm sure as the heating pad does. RLS.org has a lot of info on it as well. Along with a medical ID alert that you can print out so EMR's know what/what not to do (i.e., don't restrain the patient's legs!)

You can also fill out an online medical alert at http://www.medids.com/free-id.php to carry with you re CPAP/OSA

Linda

Snoredog · Post by **Snoredog** » Mon Apr 16, 2007 2:40 pm

[quote="lpady"]WOW - Quinine banned by FDA, huh??? No wonder I am distrustful of the medical profession -- my doctor told me I should try Tonic Water because of the Quinine content! I had asked about Requip since I'm currently taking Klonopin and don't like that it can be addictive/habit forming which means it will eventually I will need to take more to have the same effect.

I know that when it's really bad I'll take a bath in the hottest water I can stand and that helps -- I'm sure as the heating pad does. RLS.org has a lot of info on it as well. Along with a medical ID alert that you can print out so EMR's know what/what not to do (i.e., don't restrain the patient's legs!)

You can also fill out an online medical alert at http://www.medids.com/free-id.php to carry with you re CPAP/OSA

Linda

lpady · Post by **lpady** » Mon Apr 16, 2007 3:03 pm

I'm finding if it is FDA approved (like Vioxx), it is more likely to kill ya.

Sure in the heck hope they don't ever approve melatonin for anything, but I'm sure if the drug companies like the makers of ambien or lunesta have their way they will all of a sudden find fault with it, even though the government tested it themselves on the military back in the 50's to reset the circadian rhythms on pilots.

Heck, I was on Vioxx, Resulin, my mother took DES while pregnant (causes cancer and reproductive abnormalities in the offspring), look at Thalidomide!! Government tests a lot of things - even the atom bomb. One of these days I'm sure they'll find out that breathing can kill us

Heck, maybe this is just another way of government mind control -- I THOUGHT I was hearing voices in my CPAP...... (do-do do-do do-do do-do)

Sigh, I'm such a nutcase!!! At least now I can say the reason I am so nuts is that I'm just HOSED :LOL:

SleepySandy · Post by **SleepySandy** » Mon Apr 16, 2007 3:59 pm

lplady,

My mom has a very, very severe case of RLS. My sister also has RLS but not as bad as my mom. Both tried Requip but it caused insomnia for both of them - kind of defeats the purpose. You just might want to be aware of the possibility of insomnia.

My mom has the most success with Mirapex. Have you tried that?

If you go off Klonopin, be sure to wean - I'm pretty sure that's a med you don't want to stop cold turkey.

Mask

Additional Comments: RLS, EDS, Depression (which will hopefully go away after xPAP??? )

Mask	Humidifier

Mask	Humidifier

Bad night

Bad night

Soap bar under sheets for RLS