ghost mask

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
lisajune103161

ghost mask

Post by lisajune103161 » Mon Jul 11, 2016 2:44 pm

Hi there,
I have a nasal mask. Does anyone ever feel like their mask is on when its not? I feel it all the time when I am working. I cannot explain it any better. I hope I am not the only strange one!

User avatar
mummmz
Posts: 247
Joined: Sat Jun 18, 2016 5:06 pm
Location: USA

Re: ghost mask

Post by mummmz » Mon Jul 11, 2016 2:47 pm

I have to get up and wash my face then put on lotion. I can smell the plastic and feel how dry it makes my skin otherwise.

_________________
Machine: AirSense 11 Autoset
Mask: ResMed AirFit™ F30 Mask + 2 Replacement Cushions Bundle
Additional Comments: Autopap Min 8.4, max 15, ramp off, flex 3, heated humidity off, O2 therapy added 5/20/22 & discontinued 8/26/22 after asthmas dx/treatment

User avatar
Sir NoddinOff
Posts: 4190
Joined: Mon May 14, 2012 5:30 pm
Location: California

Re: ghost mask

Post by Sir NoddinOff » Mon Jul 11, 2016 4:24 pm

I've been here four years (checking in almost every day) and that's the first time I've heard that one. I think it's just you... sorry I can't be more comforting. Maybe it's something like 'phantom limb syndrome', tho hopefully your nose isn't cut off.

_________________
Mask: AirFit™ F10 Full Face Mask with Headgear
Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2.
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.

User avatar
chunkyfrog
Posts: 34548
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nowhere special--this year in particular.

Re: ghost mask

Post by chunkyfrog » Mon Jul 11, 2016 6:32 pm

This will go away once you are used to it enough.
In the meantime, meditate on the sensation.
That sometimes forces it to fade more quickly.

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

Michelle-OH
Posts: 247
Joined: Sun Dec 06, 2015 2:10 pm
Location: Columbus OH

Re: ghost mask

Post by Michelle-OH » Mon Jul 11, 2016 7:41 pm

Another 'strange one' here, I feel like I have it on a lot, it's an odd sensation isn't it?!

User avatar
Grace~~~
Posts: 662
Joined: Tue May 10, 2016 3:27 pm
Location: Florida

Re: ghost mask

Post by Grace~~~ » Mon Jul 11, 2016 7:59 pm

chunkyfrog wrote:This will go away once you are used to it enough.
In the meantime, meditate on the sensation.
That sometimes forces it to fade more quickly.

Nice!

I needed this reminder technique today.
(not for ghost mask in *my* case but the technique is valid still)

Thank you, ChunkyFrog.

+1
Began XPAP May 2016. Autoset Pressure min. 8 / max 15. Ramp off. ERP set at 2. No humidity. Sleepyhead software installed and being looked at daily, though only beginning to understand the data.

DBestman
Posts: 16
Joined: Fri May 06, 2016 6:18 pm
Location: Canada

Re: ghost mask

Post by DBestman » Tue Jul 12, 2016 7:28 am

lisajune103161 wrote:Does anyone ever feel like their mask is on when its not? I feel it all the time when I am working. I cannot explain it any better. I hope I am not the only strange one!
We're at least two strange ones . I get that sensation too.

User avatar
Sir NoddinOff
Posts: 4190
Joined: Mon May 14, 2012 5:30 pm
Location: California

Re: ghost mask

Post by Sir NoddinOff » Tue Jul 12, 2016 3:38 pm

There you go, two other sufferers.
As I read these replies I wondered if stress played a role in that feeling... like at work or wherever. If I were you, during the day, I'd try some topical analgesic, like an OTC drugstore anti-itch cream to help you get over the hump. Maybe a hydrocortizone 1% cream, tho some people are fussy about using that. Aloe Vera gel is another idea and I think Gold Bond makes one. Hopefully over a short period of time this feeling will disappear or at least fade into the background. I'm thinking one of these preparations will affect the skin's nerve endings and allow you to think about something else... maybe it'll just make you feel like you're doing something to abate the feeling.

_________________
Mask: AirFit™ F10 Full Face Mask with Headgear
Additional Comments: Sleepyhead software v.0.9.8.1 Open GL and Encore Pro v2.2.
Last edited by Sir NoddinOff on Tue Jul 12, 2016 4:01 pm, edited 1 time in total.
I like my ResMed AirFit F10 FFM - reasonably low leaks for my ASV therapy. I'm currently using a PR S1 AutoSV 960P Advanced. I also keep a ResMed S9 Adapt as backup. I use a heated Hibernite hose. Still rockin' with Win 7 by using GWX to stop Win 10.

User avatar
ChicagoGranny
Posts: 14924
Joined: Sun Jan 29, 2012 1:43 pm
Location: USA

Re: ghost mask

Post by ChicagoGranny » Tue Jul 12, 2016 3:50 pm

lisajune103161 wrote:Does anyone ever feel like their mask is on when its not?
Mine feels like it is not on when it is.

Movieman
Posts: 82
Joined: Mon Nov 30, 2020 11:38 am

Re: ghost mask

Post by Movieman » Fri Feb 05, 2021 7:17 pm

DBestman wrote:
Tue Jul 12, 2016 7:28 am
lisajune103161 wrote:Does anyone ever feel like their mask is on when its not? I feel it all the time when I am working. I cannot explain it any better. I hope I am not the only strange one!
We're at least two strange ones . I get that sensation too.
This is exactly what is happening to me now!!!!!! I have a FFM. I know this is an older thread, but did this feeling ever go away for you? It feels like the mask is still on my face when it’s not. I can actually feel the outline on my face of wear mask fits around and the sensation gets stronger when I lay on my side while not wearing the mask. Almost like phantom pain or limb syndrome. No pain though. I’m seriously considering ceasing therapy until I speak with doctor. I did not use my CPAP for 1 night and I still feel it. I’m not sure if it’s physical or if it is psychological. However it is ver unsettling. I’ve tried to wear the mask a bit looser with no relief. Thanks

User avatar
chunkyfrog
Posts: 34548
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nowhere special--this year in particular.

Re: ghost mask

Post by chunkyfrog » Fri Feb 05, 2021 7:22 pm

After my bilateral mastectomy/reconstruction, I stopped wearing bras.
Eventually, I stopped feeling the "ghost bra".
When I undress, though, I still get that pesky back band itchy spot. :shock:

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

Movieman
Posts: 82
Joined: Mon Nov 30, 2020 11:38 am

Re: ghost mask

Post by Movieman » Fri Feb 05, 2021 8:19 pm

chunkyfrog wrote:
Fri Feb 05, 2021 7:22 pm
After my bilateral mastectomy/reconstruction, I stopped wearing bras.
Eventually, I stopped feeling the "ghost bra".
When I undress, though, I still get that pesky back band itchy spot. :shock:
Haha! I am sorry to hear about your mastectomy but your description is spot on. My buddy had his leg amputated many years ago and he still feels it. He gets cramps in his toe, calf etc. I didn’t realize some of those phantom pains could go away. Is this what’s happening to me? Psychological?

User avatar
chunkyfrog
Posts: 34548
Joined: Mon Jul 12, 2010 5:10 pm
Location: Nowhere special--this year in particular.

Re: ghost mask

Post by chunkyfrog » Fri Feb 05, 2021 11:06 pm

I don't understand how nerves work, but I understand that most get used to it
to the point that it's not significant.
As for my mastectomy, they got all the cancer (nearly 6 years ago),
and left me with jugs that I can make dance.
Cool party trick . . .

_________________
Mask: AirFit™ P10 For Her Nasal Pillow CPAP Mask with Headgear
Additional Comments: Airsense 10 Autoset for Her

User avatar
elsueno
Posts: 100
Joined: Fri Oct 09, 2020 2:07 pm

Re: ghost mask

Post by elsueno » Sat Feb 06, 2021 5:55 am

x

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: ResMed S9 VPAP Auto (I've had 4), I don't use the humidifier
Last edited by elsueno on Sat Feb 20, 2021 1:30 am, edited 1 time in total.

User avatar
elsueno
Posts: 100
Joined: Fri Oct 09, 2020 2:07 pm

Re: ghost mask

Post by elsueno » Sat Feb 06, 2021 6:23 am

x

_________________
Mask: Bleep DreamPort CPAP Mask Solution
Additional Comments: ResMed S9 VPAP Auto (I've had 4), I don't use the humidifier
Last edited by elsueno on Sat Feb 20, 2021 1:29 am, edited 3 times in total.