The Perfect Mask Doesn't exist... does it have to?

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
Notsoclever
Posts: 4
Joined: Thu Aug 01, 2024 1:14 am

The Perfect Mask Doesn't exist... does it have to?

Post by Notsoclever » Thu Aug 01, 2024 1:40 am

Equipment: Resmed 11 Autoset Cpap
Mask: Dreamwear or F20 Full Face with memory foam
So, my sleep apnea is bad, just under 120 events an hour without the machine, but I'm having so many issues with the machine that I might as well sleep without it if I want quality sleep because:

The machine wakes me up every hour, sometimes sooner than an hour, with air leaks and increased pressure, or by squirting water at me because the pressure is so high that the heated hose can't handle the humidity necessary to keep me from drying out.

It feels like every step I take forward brings another issue, my current one is this.

I found a mask that almost works, the Dreamwear full face. Before this I used the airtouch f20 (which was perfect except that ut couldn't keep up with my tossing and turning and developed a leak where it connected to the house). Right now, my big old nose keeps dislodging from the nasal pillow. I could keep replacing the f20 everytime it breaks, but the Dreamwear seems perfect for my active sleep style... except I apparently need something that holds my nose rather than tests under it.

Is there something I can do? I need to stop this air leak issue, I've had it with literally every mask I have tried and it's making the machine useless. I check the fit every time, but in my sleep it keeps getting dislodged as I roll and shift. The f20 with memory foam was amazing while it lasted, maybe I had had a bad one (leaked where it connected to the mask from the hose feed line after twoish weeks of use). But I need help, I can't just keep waking up over and over again, sometimes I'm barely asleep 20 minutes before the pressure is so high it wakes me up again.

Thank you in advance to anyone who takes the time.

Addendums:
* I also hack a lot in my sleep from a Gerd issue. Enough that I've noticed the masks pop.
* The pressure gets up to about 18-19 before it wakes me up, and it gets there fast.
*Leaks with the dreamwear are the lowest so far, at 61.9 l/min. It was around 72-80 with the f20, but it didn't matter because it stayed in place. It only became a problem when that leak climbed above 100.

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Julie
Posts: 19958
Joined: Tue Feb 28, 2006 12:58 pm

Re: The Perfect Mask Doesn't exist... does it have to?

Post by Julie » Thu Aug 01, 2024 7:38 am

Are you doing anything about the GERD?

User avatar
ozij
Posts: 10311
Joined: Fri Mar 18, 2005 11:52 pm

Re: The Perfect Mask Doesn't exist... does it have to?

Post by ozij » Thu Aug 01, 2024 10:20 am

Notsoclever wrote:
Thu Aug 01, 2024 1:40 am
Equipment: Resmed 11 Autoset Cpap
Mask: Dreamwear or F20 Full Face with memory foam
So, my sleep apnea is bad, just under 120 events an hour without the machine,[...]
But I need help, I can't just keep waking up over and over again, sometimes I'm barely asleep 20 minutes before the pressure is so high it wakes me up again.
[...]
Addendums:
* I also hack a lot in my sleep from a Gerd issue. Enough that I've noticed the masks pop.
* The pressure gets up to about 18-19 before it wakes me up, and it gets there fast.
*Leaks with the dreamwear are the lowest so far, at 61.9 l/min. It was around 72-80 with the f20, but it didn't matter because it stayed in place. It only became a problem when that leak climbed above 100.
Lots of important info that you gave us, but to really help you we need more. See the very first post on the forum.
Did you know that restless sleep and Gerd often go with untreated sleep apnea?

We really have to know the settings of your machine. You may be describing an absurdly low ramp pressure that has the machine zooming up when it ends.
You may be describing "run away pressure" in which the machine misinterprets your breathing and pushes the pressure way higher than you need.
Or maybe you do need the higher pressure, but need a period of getting used to it.

Whatever it is, we will know better when we see your full data for when you use the machine. So, get an SD card if you don't have one yet (32G or less, no need for a large one at all), put it in the machine before you go to sleep, and don't take it out till some time after you get up. Then create a free account on SleepHQ, upload your data and create a public link you can share with us. OSCAR is also great for tracking your data, not as easy for sharing.

Consider a hose hanging system self made or bought - it might help.
Notsoclever wrote:
Thu Aug 01, 2024 1:40 am
The machine wakes me up every hour, sometimes sooner than an hour, with air leaks and increased pressure, or by squirting water at me because the pressure is so high that the heated hose can't handle the humidity necessary to keep me from drying out.
It's also possible you're drying out because of the leaks, and you will need less humidity when you're not leaking.

Welcome to the forum. Many of us have had problems when starting therapy. And while a perfect mask would be lovely, it won't work if the machine isn't set up properly.

_________________
Mask: AirFit™ P10 Nasal Pillow CPAP Mask with Headgear
Additional Comments: Machine: Resmed AirSense10 for Her with Climateline heated hose ; alternating masks.
And now here is my secret, a very simple secret; it is only with the heart that one can see rightly, what is essential is invisible to the eye.
Antoine de Saint-Exupery

Good advice is compromised by missing data
Forum member Dog Slobber Nov. 2023

User avatar
vandownbytheriver
Posts: 544
Joined: Sat Feb 03, 2024 11:42 pm

Re: The Perfect Mask Doesn't exist... does it have to?

Post by vandownbytheriver » Thu Aug 01, 2024 2:48 pm

Notsoclever wrote:
Thu Aug 01, 2024 1:40 am
Equipment: Resmed 11 Autoset Cpap
Mask: Dreamwear or F20 Full Face with memory foam
So, my sleep apnea is bad, just under 120 events an hour without the machine, but I'm having so many issues with the machine that I might as well sleep without it if I want quality sleep because:

The machine wakes me up every hour, sometimes sooner than an hour, with air leaks and increased pressure, or by squirting water at me because the pressure is so high that the heated hose can't handle the humidity necessary to keep me from drying out.

It feels like every step I take forward brings another issue, my current one is this.

I found a mask that almost works, the Dreamwear full face. Before this I used the airtouch f20 (which was perfect except that ut couldn't keep up with my tossing and turning and developed a leak where it connected to the house). Right now, my big old nose keeps dislodging from the nasal pillow. I could keep replacing the f20 everytime it breaks, but the Dreamwear seems perfect for my active sleep style... except I apparently need something that holds my nose rather than tests under it.

Is there something I can do? I need to stop this air leak issue, I've had it with literally every mask I have tried and it's making the machine useless. I check the fit every time, but in my sleep it keeps getting dislodged as I roll and shift. The f20 with memory foam was amazing while it lasted, maybe I had had a bad one (leaked where it connected to the mask from the hose feed line after twoish weeks of use). But I need help, I can't just keep waking up over and over again, sometimes I'm barely asleep 20 minutes before the pressure is so high it wakes me up again.

Thank you in advance to anyone who takes the time.

Addendums:
* I also hack a lot in my sleep from a Gerd issue. Enough that I've noticed the masks pop.
* The pressure gets up to about 18-19 before it wakes me up, and it gets there fast.
*Leaks with the dreamwear are the lowest so far, at 61.9 l/min. It was around 72-80 with the f20, but it didn't matter because it stayed in place. It only became a problem when that leak climbed above 100.
Auto humidity and hose temp are available... this prevents rainout.

I'm a big fan of Fisher & Paykel masks... the Vitera is great for higher pressures. The Evora FF mask is a 'hybrid', it goes below the nose but covers the mouth... at higher pressures I need FF to stop mouth-leaking. I tape my mouth still.

I tried the Resmed F20 AirTouch. The foam seems to sink down and let leaks happen, just as you'd imagine memory foam to do. Be aware that these cushions are recommended 1 month replacement... they don't last near as long as the normal ones. I have both the N20 and F20 AirTouch... don't like either.

Your leak measurements sound like peak leaks... not mean/average/whatever. We need to see graphs of the leaks to determine what's really going on... I recommend SleepHQ... use your machine's SD card and upload data to SHQ, start a free account, that's the best way to share data here, you just post a link. Here's a night of mine:

https://sleephq.com/public/89ff1ac0-dda ... e1c14b5c7f

Note how all my settings and statistics are displayed... also note you can zoom in using the mouse, see every breath I took. Also note that the link is anonymous.

If you go on your back your pressures will rise... that might be what's happening. For these stratospheric pressures a bi-level machine is best... we'll know more when we see your graphs.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion)
Additional Comments: I use O2Ring, Oscar, SleepHQ, and Cover Roll Stretch mouth tape.

Weld3z
Posts: 9
Joined: Sat Jul 06, 2024 3:14 pm

Re: The Perfect Mask Doesn't exist... does it have to?

Post by Weld3z » Thu Aug 01, 2024 3:18 pm

It took me almost 3 years to find the perfect mask, Have you tried F&P Vitera before?
My current pressure 14/20 this mask can handle more than that easy.

Good luck

Notsoclever
Posts: 4
Joined: Thu Aug 01, 2024 1:14 am

Re: The Perfect Mask Doesn't exist... does it have to?

Post by Notsoclever » Thu Aug 01, 2024 10:43 pm

Julie wrote:
Thu Aug 01, 2024 7:38 am
Are you doing anything about the GERD?
Currently treating it with omeprazole daily. It usually doesn't flair up, but I have an issue with dehydration due to time blindness that I'm attempting to treat with atomoxetine and alarms. That and too much caffeine. My next appointment to deal with the adhd symptoms is in November where I will likely discuss moving to something stronger because I didn't expect my need for caffeine and inability to remember to drink water to cause this many issues with the cpap treatment.

I'm rather new to trying to take care of myself.

Notsoclever
Posts: 4
Joined: Thu Aug 01, 2024 1:14 am

Re: The Perfect Mask Doesn't exist... does it have to?

Post by Notsoclever » Thu Aug 01, 2024 10:53 pm

vandownbytheriver wrote:
Thu Aug 01, 2024 2:48 pm
Notsoclever wrote:
Thu Aug 01, 2024 1:40 am
Equipment: Resmed 11 Autoset Cpap
Mask: Dreamwear or F20 Full Face with memory foam
So, my sleep apnea is bad, just under 120 events an hour without the machine, but I'm having so many issues with the machine that I might as well sleep without it if I want quality sleep because:

The machine wakes me up every hour, sometimes sooner than an hour, with air leaks and increased pressure, or by squirting water at me because the pressure is so high that the heated hose can't handle the humidity necessary to keep me from drying out.

It feels like every step I take forward brings another issue, my current one is this.

I found a mask that almost works, the Dreamwear full face. Before this I used the airtouch f20 (which was perfect except that ut couldn't keep up with my tossing and turning and developed a leak where it connected to the house). Right now, my big old nose keeps dislodging from the nasal pillow. I could keep replacing the f20 everytime it breaks, but the Dreamwear seems perfect for my active sleep style... except I apparently need something that holds my nose rather than tests under it.

Is there something I can do? I need to stop this air leak issue, I've had it with literally every mask I have tried and it's making the machine useless. I check the fit every time, but in my sleep it keeps getting dislodged as I roll and shift. The f20 with memory foam was amazing while it lasted, maybe I had had a bad one (leaked where it connected to the mask from the hose feed line after twoish weeks of use). But I need help, I can't just keep waking up over and over again, sometimes I'm barely asleep 20 minutes before the pressure is so high it wakes me up again.

Thank you in advance to anyone who takes the time.

Addendums:
* I also hack a lot in my sleep from a Gerd issue. Enough that I've noticed the masks pop.
* The pressure gets up to about 18-19 before it wakes me up, and it gets there fast.
*Leaks with the dreamwear are the lowest so far, at 61.9 l/min. It was around 72-80 with the f20, but it didn't matter because it stayed in place. It only became a problem when that leak climbed above 100.
Auto humidity and hose temp are available... this prevents rainout.

I'm a big fan of Fisher & Paykel masks... the Vitera is great for higher pressures. The Evora FF mask is a 'hybrid', it goes below the nose but covers the mouth... at higher pressures I need FF to stop mouth-leaking. I tape my mouth still.

I tried the Resmed F20 AirTouch. The foam seems to sink down and let leaks happen, just as you'd imagine memory foam to do. Be aware that these cushions are recommended 1 month replacement... they don't last near as long as the normal ones. I have both the N20 and F20 AirTouch... don't like either.

Your leak measurements sound like peak leaks... not mean/average/whatever. We need to see graphs of the leaks to determine what's really going on... I recommend SleepHQ... use your machine's SD card and upload data to SHQ, start a free account, that's the best way to share data here, you just post a link. Here's a night of mine:

https://sleephq.com/public/89ff1ac0-dda ... e1c14b5c7f

Note how all my settings and statistics are displayed... also note you can zoom in using the mouse, see every breath I took. Also note that the link is anonymous.

If you go on your back your pressures will rise... that might be what's happening. For these stratospheric pressures a bi-level machine is best... we'll know more when we see your graphs.
Oh wow, I'm a data wonk and I had no idea that my machine was capable of giving me all that. I've just been using Resmed's myair app. I'll go out and grab an SD card after my camping trip this weekend and then grab what data I can. Thank you for the advice. And maybe it wasn't the part what it joined that busted the most after all given what you said about the f20, it has been about a month of use. I just thought it was possibly my fault since it stopped working after I rolled over and dislodged the machine yanking the hose connection loose in the commotion. Woke me with wire a fright, I thought for a moment I must have broken this machine I'm still paying on.

Notsoclever
Posts: 4
Joined: Thu Aug 01, 2024 1:14 am

Re: The Perfect Mask Doesn't exist... does it have to?

Post by Notsoclever » Thu Aug 01, 2024 10:55 pm

Weld3z wrote:
Thu Aug 01, 2024 3:18 pm
It took me almost 3 years to find the perfect mask, Have you tried F&P Vitera before?
My current pressure 14/20 this mask can handle more than that easy.

Good luck
Not yet, but you're the second person to suggest it so I'll be talking to my doctor about it on my next visit.

User avatar
vandownbytheriver
Posts: 544
Joined: Sat Feb 03, 2024 11:42 pm

Re: The Perfect Mask Doesn't exist... does it have to?

Post by vandownbytheriver » Fri Aug 02, 2024 8:30 pm

Notsoclever wrote:
Thu Aug 01, 2024 10:53 pm
Oh wow, I'm a data wonk and I had no idea that my machine was capable of giving me all that. I've just been using Resmed's myair app. I'll go out and grab an SD card after my camping trip this weekend and then grab what data I can. Thank you for the advice. And maybe it wasn't the part what it joined that busted the most after all given what you said about the f20, it has been about a month of use. I just thought it was possibly my fault since it stopped working after I rolled over and dislodged the machine yanking the hose connection loose in the commotion. Woke me with wire a fright, I thought for a moment I must have broken this machine I'm still paying on.
Any old camera card etc will work... Resmed ships with 4gig cards... older machines will have problems with anything bigger than 32gig but you have an 11 so not sure how big you can go. 32gig will hold many years of data, you actually don't want to store that much anyway without archiving it off.

I use both Oscar for home use and SleepHQ for sharing... Oscar is best for home perusal, you can make the graph Y-axis as big as you want for each datum... but for sharing an Oscar screenshot is not near as useful as a SHQ link. MyAir is like those stars next to your name in kindergarten... who cares how many times you got up to pee? Both are free... I pay extra to put my O2Ring in my SHQ, it also supports the platform, otherwise both are free:

Oscar (Win/Mac/Linux app)
www.sleepfiles.com/oscar

SleepHQ (website)
www.sleephq.com

Not sure what part of the mask you broke. There are three parts to (most) masks, the cushion, the frame, and the 'headgear' or straps. For the F20 that front plug that comes out has a diffuser and exhaust... replace that when it gets discolored I hear. Or get a Vitera and enjoy Fisher & Paykel's superior mask! I was lucky and got started on Resmed machines and F&P masks early.

Also, if you fill out your profile here, you'll let us know what your machine and mask is etc... see the bottom of our posts. Just a convenience. Welcome to the forum.

_________________
Machine: AirCurve™ 10 VAuto BiLevel Machine with HumidAir™ Heated Humidifier
Mask: Fisher & Paykel Vitera Full Face Mask with Headgear (S, M, or L Cushion)
Additional Comments: I use O2Ring, Oscar, SleepHQ, and Cover Roll Stretch mouth tape.