Desperate Help in Desmokifying my Machine.

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
jules
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Post by jules » Fri Oct 05, 2007 9:25 pm

We can have dinner whenever you want to bring it.

And maybe we can find a nicer location than the outlet mall.

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Babette
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Post by Babette » Fri Oct 05, 2007 9:27 pm

Yer a desperate individual proposing dinner dates to a disabled wheezing hosehead.

God luv ya' for it!
Babs

PS - I'm partial to Burgerville - love those Portobello baskets!!!

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap.
I currently have a stash of Nasal Aire II cannulas in Small or Extra Small. Please PM me if you would like them. I'm interested in bartering for something strange and wonderful that I don't currently own. Or a Large size NAII cannula. :)

jules
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Post by jules » Fri Oct 05, 2007 9:30 pm

Now seriously for all of those following our online affair, we have plans to announce our upcoming engagement to our families soon - NOT

Remember that she threw the first hug at me.

And remember the point of my first post on this thread - get the help you need.

Jules

departing this thread and going back into lurker-dom until the next soyala thread appears

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Titrator
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Post by Titrator » Fri Oct 05, 2007 10:28 pm

The easiest way to remove smoke odors from a cpap is to place it outside and run it for a few hours or more. Ozone is what will clean out your machine and placing your machine just outside your door will suck in the needed ozone to clean your machine.

You can also use an ozone machine, like an air purifier if you have one. This is how DME's get the smell out. Warning though, some smells may not come out, depending on how the cigarette smell is.

Cheers,

Titrator Ted

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Snoredog
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Post by Snoredog » Sat Oct 06, 2007 3:02 am

[quote="jules"]Unfortunately most internet forums have trolls around. Sometimes even moderators are trolls. Some forums are heavily moderated so there can't be any dissenting opinions.

Personally, I respect both SnoreDog and SAG. However I respect each for different reasons.

I know SnoreDog is abrasive but he has a vast wealth of information. I purchased the soyala and contacted Somnotech when I had problems based on his posts. I think he is aware of a lot of sleep apnea literature and information as a layman. I have also seen the negative side of SnoreDog in repeated attacks. I just try to read his posts and you can tell pretty early in them if he has helpful information or is out to attack someone. He really does know a lot as a layman. I just wish he would be a little more mellow.

I respect SAG with his professional options and expertise. I know he was attacked for deleting posts where SnoreDog attacked a tech. As much as I don't approve of censorship on an forum, I think the attacks were uncalled for and stated such at the time. Did anyone else notice that those posts never reappeared? or did I miss that? SAG had provided a ton of free advice to online sleep forums under all his masks - deltadave, sleepydave, stillanotherguest are the 3 I am aware of. I hope I am not divulging any secret information by naming these.

There are many others on the forum I also respect and one has to remember each of us who participate here brings our own personalities, problems, and knowledge to this place. We all started out as newbies not knowing what this thing called sleep apnea was and we came here for support and information. The "oldies" helped guide us as we went through this journey. With this we faced problems and sought help. Together as a group we grow and share knowledge. We each learn how to deal with our problems at our own rate.

Not everything works for everyone so we learn options and adjust what is written here to our own circumstances. No one here knows everything but again we are here to share our knowledge and experiences with others.

Each of us has other medical and mental health issues hidden inside of us. Sometimes we openly share them but many times we don't. That doesn't make them any less real. However when we need real medical help, it is very important to seek out competent medical professionals. A lot of the suggestions here work for many people with OSA but not for everyone and I would hope that any newbie would realize that.

AC, as much as you feel attacked by SnoreDog, remember you are above his attacks. You can choose to ignore them. You can choose to walk away. But you can also take the good advice he can offer if you can sort it out from all the negative stuff you are feeling. He isn't any better or worse of a person than you are. We come here as equals.

As has been pointed out above, many of us suffer from depression. I am sure there are many other mental health issues facing people on this forum. Remember this isn't a mental health forum but there are those around if you search for them. But again, also remember if you need urgent medical care, you have to find it locally and not online.

If you need to see your doctor then walk in and demand to be seen or go to the nearest ER. If you think you are going to take an OD of pills, call a crisis line. 1-800-SUICIDE and 1-800-273-TALK seem to be mentioned often online. Check your phone book too for local numbers. If it comes down to it call 911 and ask to be connected to a crisis counselor. Some areas of the country have other mental health crisis numbers - again check your phone book.

There isn't any shame in calling one of these numbers. I have done it myself many times. I know there is still a stigma in mental illness in this country, but which is worse - living with it without getting help or getting the help you need and deserve. What might even be worse is to carry through and OD. Yeah, been there done that myself. I don't talk about it. The first time I had pills in hand I called a crisis line and it really helped me sort out what was going on. Unfortunately the second time years later, well I took the pills and ended up in the hospital for a while. Who knows what permanent damage I did that day? I would highly recommend not doing it and would suggest you call the crisis lines.

If you need to go into the hospital for a while then I would also suggest voluntary commitment over involuntary. Don't worry about the money as you have the rest of your life to make the $$ to pay for it. They will work out payment options.

You made a step forward in accepting this diagnosis of sleep apnea and you are working on treating it. Is depression that much worse? Can't you work on getting help for it?

Okay - end of my soapbox for the day.


......................

and now I expect to be attacked .................

Oh well - it won't be my first time online let alone in a sleep apnea forum.

someday science will catch up to what I'm saying...

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Snoredog
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Post by Snoredog » Sat Oct 06, 2007 3:25 am

StillAnotherGuest wrote:
AdmiralCougar wrote:In the following thread I discovered that Snoredog is the boards Resident Troll. With his personal attacks.

viewtopic/t24675/I-have-a-choices-of-4- ... -tips.html

I had decided to withdraw from the forum a little (I never meant it to sound like I would completely leave the board.) because I realized that with my state of mind right now I can't handle attacks like that. In the past I could let something like that slide, but as depressed as I've been I almost did something really stupid because of how his attack affected me. If my husband hadn't have come home when he did I don't think I'd be here right now. I had gathered my meds (most of them an almost full three month supply) and some of the old unfinished prescriptions around the house and I almost took everything. Before I was fairly sure I could never go through with it, but after yesterday I can't say that anymore. I need to get help, and I don't get to see my Dr. till Friday. I can say to myself all I want right now that he means nothing, he is nothing, what he says is crap, but I can't stop feeling how I am.

I can truly say I don't care how helpful his posts may have been in the past. They are no longer wanted or welcomed in my current or future threads. But since Trolls seem to be allowed to roam free I'm going to mostly relegate myself to PM's for awhile. I know it is a silly thing to get so upset over, I feel really stupid for letting a nobody on the internet get to me.

*huggles everyone but the Troll*
Christy
Yeah, I know what you mean.

Here's some light reading that will...will..

Actually, I don't know what it will do, but here's the thread, and a thread within a thread...

Whatever Happened To...?

Will the Forces of Good eventually overcome the Forces of Evil in the world?

Of course they will.

But internet forums are a virtual world with about as much reality as Warcraft, so this will always be the Devil's Playground.

What I found surprising was not the number of idiots (there really aren't that many) but the lack of patriots.
ozij wrote:You can take or leave snoredog - but treating the whole forum as though it had snoredog's rules of engagement does a disservice to both yourself and other forum members.

This is not snoredog's forum.

O.
There's a patriot.
SAG
And we all remember your trigger happy finger on the Delete button.
someday science will catch up to what I'm saying...

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gasp
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Post by gasp » Sat Oct 06, 2007 9:43 am

Anonymous wrote:Christy, your pain is way worse than mine. You have all my prayers and support. [[[[[[[[[CHRISTY]]]]]]]]]]]]

Take the BP meds. I know, I know... Just take them. It's temporary. It's a journey. You gotta jump through some hoops and wade through some puddles on this journey.

Did you turn in your paperwork? Are you on that path?

As for me and my arm... I have a diagnosis - Radial Tunnel Syndrome. I have a series of "yoga for arms" exercises to do. I do them once an hour. Every hour that I'm awake... )) Not doing so well today. Did them once so far.

I also have a thing to wear in the day that cushions my arm from leaning on it, and a thing to wear at night that bends my fingers up. It worked okay last night. Hurt a bit, but I slept some. I did wake up at one point and find the splint off my arm and laying beside me. I had no memory of taking it off. Now I know how some of you feel who take off your mask in your sleep!

So, she also said I had to exercise every day, and break a sweat. That sweat is important. It will help my body heal. She recommended pilates or yoga. Stretching sorts of exercises.

So, that's my story for now!

Thank you for your thoughts and prayers,
B.
Although I understand actually moving one's body is better, on those days you don't feel like exercising there is always a hot bath for sweating and releasing toxins. Salt, seaweed/salt, and lots of others are good for this. My naturopath sells a mud bath packet - I suppose it works, but ick.

It must stink having to strap on yet another therapy device. In your sleep you mind said - enough!

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Babette
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Post by Babette » Sat Oct 06, 2007 9:48 am

I'm actually getting a little better with the splint. It's funny how it's mirroring my cpap compliance. I kept it on until about 5 am today. I figure, at this rate, I'll be 100% compliant in a week or two.

The little "arm yoga" exercises are great! I need to do them MORE. I've only been managing to do them 3 or so times a day. I copied my pages and have been evangelizing all my building staff about them.

Cheers,
Barbara


_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap.
I currently have a stash of Nasal Aire II cannulas in Small or Extra Small. Please PM me if you would like them. I'm interested in bartering for something strange and wonderful that I don't currently own. Or a Large size NAII cannula. :)

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gasp
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Location: U. S.

Post by gasp » Sat Oct 06, 2007 10:03 am

[quote="Babette"]I'm actually getting a little better with the splint. It's funny how it's mirroring my cpap compliance. I kept it on until about 5 am today. I figure, at this rate, I'll be 100% compliant in a week or two.

The little "arm yoga" exercises are great! I need to do them MORE. I've only been managing to do them 3 or so times a day. I copied my pages and have been evangelizing all my building staff about them.

Cheers,
Barbara


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Babette
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Post by Babette » Sat Oct 06, 2007 10:05 am

Oh, BTW, to get back to AC, she PMed me and told me she saw her doctor and is getting some help.

GOOD JOB, ADMIRALCOUGAR! Keep up with it, and keep in touch.

Huggers,
Babs

_________________
Machine: PR System One REMStar 60 Series Auto CPAP Machine
Additional Comments: Started XPAP 04/20/07. APAP currently wide open 10-20. Consistent AHI 2.1. No flex. HH 3. Deluxe Chinstrap.
I currently have a stash of Nasal Aire II cannulas in Small or Extra Small. Please PM me if you would like them. I'm interested in bartering for something strange and wonderful that I don't currently own. Or a Large size NAII cannula. :)

-SWS
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Post by -SWS » Sat Oct 06, 2007 12:24 pm

snoredog wrote:even SWS had to show up and voice his discontent with my tag line, don't know what brought that on but if you don't like my tag line SWS then you'll just have to deal with it or I can tell you want you can do with it if you want.
No, sir. I never had any problem with your tag line. I assumed you humorously placed it out there as a tongue-in-cheek offering for the rest of us to enjoy. That tag line was a humorous offering, right?

I can't picture any layperson seriously announcing to the world that they are far ahead of science as a whole. That would be self-serving. And you are clearly here to help others. Right?

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rested gal
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Post by rested gal » Sun Oct 07, 2007 2:05 am

Speaking of tag lines, Goofproof used to use one that I liked very much:

"Be kinder than necessary, for everyone you meet is fighting some kind of battle." - Unknown

Snoredog, before cpaptalk was created, I remember reading your posts several years when you were a perpetual guest named "dizzy" on the talkaboutsleep message board. A lot of times I enjoyed your humor, and a lot of times I'd shake my head at the ugliness with which you strike out at people for no good reason.

Same here with you as "Snoredog."

You seem to take pride in saying what you think without any regard whatsoever for the feelings of anyone else.

You do try to help (which can be a scary thing to watch sometimes) other people, and you do at least mean well most of the time.

When you show a mean, cruel streak that you brag about as "telling it like it is" you diminish yourself in the eyes of more readers of this message board than you can imagine. Far more than will be saying, "Go, Snoredog, go!"

Or maybe they are saying that, too. In a very different way.

Instead of lashing out at people whenever someone gently and humorously points out, as Admiral Cougar did, a mistake you made, you could accept it and go on. I don't know why you almost always go into snapping, snarling mode when you're wrong, but that's been your modus operandi on messages boards for a long, long, long time.
Snoredog wrote:Sniff Sniff, someone must have taken a big dump here
Yes. You sure did.
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