Sorry if the post is a bit messed upFor context, am 18 in the UK and sleeps always been a pain.... Thank you to anyone who does end up reading this
While back i was really having issues bad enough to take it into my own hands without talking to dr first (heard how bad wait times are). I had for near certainty what the issue was due to every link to it, including other health issues also linking. Few months ago was able to try a cpap and instantly could tell with proof i had issues at night. Showing just under 5 ahi gradually going down, with it going to pretty high pressures and when being told about oscar could see for certain theres an issue. Was concerned enough to go to doctors and gp agreed to get referred for a test. Dont know if it changed results or not but couple weeks before the test i was using the machine as it helped enough to stick with it, especially helping with eduation atm. Carried on using it with help from the start with settings and whats going on but was nearly constantly told i need bilevel, even people here including Sleeprider (thank you). I did end up jailbreaking the machine to have bipap and asv, and it made a huge difference compared to cpap though didnt give it long enough for symptoms to change before the next issue came up.
Couple weeks ago i got the results back from the test (at home test) and came back mild 7ahi... RDI was not recorded. Dont know how accurate it is or if using cpap for the month before made a difference, seems much lower than i was expecting and was told to expect but Nhs only treats 15< so not really up to me. Though was still told they wanted me to use a cpap and got fitted and given one at an appointment? Due to previously using cpap it wasnt an adjustment at all. Settings of 4-20 no epr, not great at all obviously but can deal with it, ahi was around 2 but everything zoomed in looked like a total mess, which they cant see or bother looking at as ahi <5 is cured to them. Had a phone call appoinment to check in and asked about it rising to much higher pressures than i was told "mask fit at 10 should be fine as i rarely see people go above 11", ive been averaging around 11+ and going much higher, I know why but i wanted them to know theres an issue. Only positive thing i can say about this clinic, she said i may have upper airway resistance where she then said about possibly being referred to an ent. She said to stick with it and am getting good scores so am doing well. Have been to gp and referal is happening. I have issues with nose anyway so need to see them but at night i mouthbreathe so believe FL's are not linked to it. The clinic seemed like a mess and each doctor i saw except for the phone call didnt seem helpful or like they wanted to help.
Less than a week after the phone call was then told to come into an appointment where i was told they think i dont have an issue and are dismissing me... And because im nervous asf about this stuff i pretty much just kept on agreeing and not saying much. This was a week ago now
Am now really stuck on what to do... Do i try get retested? Do i carry on with it? Do i even have a problem? Do i quit?
REALLY in need of good sleep atm, have huge exams for the next month and being told i dont have an issue has only just added to my worries/stress atm. Am i doing the right thing. Maybe i should quit as according to a test i dont have an issue and dk how much more stress i can handle atm.
Am currently using asv mode due to being advised to with help, will send some screenshots of oscar from nights on cpap and asv. Bipap helped aswell but was told to try asv as overall did the biggest difference.
Some screenshots zoomed in from more recent last few nights on cpap machine - https://imgur.com/a/flow-rate-Hp6OnPn
SleepHQ on cpap https://sleephq.com/public/teams/share_ ... _id=ebaOaa
Just want to know if this is an actual SBD issue. Idk what to do anymore
