puresleep

General Discussion on any topic relating to CPAP and/or Sleep Apnea.
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Needsdecaf
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Post by Needsdecaf » Sun Jul 20, 2008 6:34 am

[quote="Anonymous"]I've been a CPAP user for about two years and it has eliminated my snoring and greatly helped my sleep. However, I still feel tired during the day and decided to try Puresleep. After 7 days, I can say that it works for me. No snoring at all during the night and great, restful sleep. Another way I can tell it works is by the amount I dream. Before the CPAP, no dreams at all (I assume I never made it to that stage of sleep). With the CPAP, one or two dreams per night. With the Puresleep, 4 or 5 dreams per night. It also keeps my mouth shut during sleep which was always a problem for me. Of course, it may not work for everyone and it's not a panacea, but it is worth a try for folks with minor sleep apnea. By the way, the package says it is not for those with central sleep apnea, which most of us know is different from obstructive sleep apnea.


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DreamStalker
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Post by DreamStalker » Sun Jul 20, 2008 7:43 am

Anonymous wrote:I've been a CPAP user for about two years and it has eliminated my snoring and greatly helped my sleep. However, I still feel tired during the day and decided to try Puresleep. After 7 days, I can say that it works for me. No snoring at all during the night and great, restful sleep. Another way I can tell it works is by the amount I dream. Before the CPAP, no dreams at all (I assume I never made it to that stage of sleep). With the CPAP, one or two dreams per night. With the Puresleep, 4 or 5 dreams per night. It also keeps my mouth shut during sleep which was always a problem for me. Of course, it may not work for everyone and it's not a panacea, but it is worth a try for folks with minor sleep apnea. By the way, the package says it is not for those with central sleep apnea, which most of us know is different from obstructive sleep apnea.
Are you a dentist during your day job?



President-pretender, J. Biden, said "the DNC has built the largest voter fraud organization in US history". Too bad they didn’t build the smartest voter fraud organization and got caught.

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goose
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Post by goose » Sun Jul 20, 2008 4:07 pm

My "stink-o-meter" has been alarming loudly while reading this one.....

I rarely give "Guests" any credence whatsoever, and this thread is no exception. If you can't register and tell us who you are, you really have nothing of any value to contribute..........
Sorry. It may be jaded, but history is on my side......

It's too bad that Bret has to put up with the rip-off riff-raff that the other company name generates -- it's obviously not a reputable operation.

His pur-sleep product is a real, reliable and quality product and his customer service is exemplary!!!!!

cheers
goose

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roster
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Post by roster » Mon Jul 21, 2008 8:33 am

[quote="Anonymous"]I've been a CPAP user for about two years and it has eliminated my snoring and greatly helped my sleep. However, I still feel tired during the day and decided to try Puresleep. After 7 days, I can say that it works for me. No snoring at all during the night and great, restful sleep. Another way I can tell it works is by the amount I dream. Before the CPAP, no dreams at all (I assume I never made it to that stage of sleep). With the CPAP, one or two dreams per night. With the Puresleep, 4 or 5 dreams per night. It also keeps my mouth shut during sleep which was always a problem for me. Of course, it may not work for everyone and it's not a panacea, but it is worth a try for folks with minor sleep apnea. By the way, the package says it is not for those with central sleep apnea, which most of us know is different from obstructive sleep apnea.


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DreamStalker
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Post by DreamStalker » Mon Jul 21, 2008 9:11 am

[quote="rooster"][quote="Anonymous"]I've been a CPAP user for about two years and it has eliminated my snoring and greatly helped my sleep. However, I still feel tired during the day and decided to try Puresleep. After 7 days, I can say that it works for me. No snoring at all during the night and great, restful sleep. Another way I can tell it works is by the amount I dream. Before the CPAP, no dreams at all (I assume I never made it to that stage of sleep). With the CPAP, one or two dreams per night. With the Puresleep, 4 or 5 dreams per night. It also keeps my mouth shut during sleep which was always a problem for me. Of course, it may not work for everyone and it's not a panacea, but it is worth a try for folks with minor sleep apnea. By the way, the package says it is not for those with central sleep apnea, which most of us know is different from obstructive sleep apnea.

President-pretender, J. Biden, said "the DNC has built the largest voter fraud organization in US history". Too bad they didn’t build the smartest voter fraud organization and got caught.

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beth1954
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I know this thread is pretty old, but....

Post by beth1954 » Mon Jul 21, 2008 12:59 pm

My mother has a friend with severe sleep apnea. she tried the mouth device and had terrible luck. For one thing, when she woke up in the morning, she had trouble with her jaw, because the device makes her lower jaw jut out just a little bit all night.
Now I know my cats want to kill me. They unplugged my CPAP machine.......true story.

rejmd
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Post by rejmd » Sat Jul 26, 2008 10:15 am

I have not tried the Puresleep device, but if I had good results with it, I might be reluctant to post here, because so many members would accuse me of spamming. I was hoping to see what other users have experienced with it here, before I try it, and that information would be very helpful.

I have moderately severe sleep apnea, had UPP 9 y ago with minor improvement, and used 2 mandibular advancement devices with some benefit since then. Each of those devices cost more than $1000. I got my first APAP this year when the 5 yr old oral device broke. I have not had followup PSG yet, but my impression is the APAP is more effective (compared to my old poorly fitting oral device). Unfortunately, I'm more likely to forget to put the APAP on, or to fail to replace it after getting up, so my compliance was better with the oral device.

There's no doubt that CPAP is more effective for mod. to severe OSA, compared to an oral device. However, many people can't or won't adjust to CPAP. or can't afford CPAP. One would suspect that a properly used oral device would be preferable to no treatment, though I don't know if that's proven. If that's true, a partly effective inexpensive device could be a real benefit to many people, even if it is suboptimal therapy. Some people with symptoms of severe apnea completely refuse evaluation or treatment due to financial distress and lack of insurance coverage. If an affordable device can lower the AHI and decrease severity of hypoxic periods, it's better than nothing!

Another potential uses for a partly effective oral device might be for the regular CPAP user who often removes the device during sleep, as a backup system.

Also, might wearing of an oral device along with CPAP permit use of lower CPAP pressure and improve comfort and tolerability for some users??

Also, CPAP gear is cumbersome and bulky and requires electricity, and facility for sanitation. A partly effective backup oral system might be very good to have in case of power failure, or when travelling or camping, where again the alternative may be noncompliance.

So, based on the low price and ease of obtaining it, one might guess that a nonapproved device such as from Puresleep could serve some useful role for moderate to severe apnea, by improving treatment compliance and effectiveness, with the understanding that it's not a fully effective substitute for CPAP.

With that said, the experience of actual users of the Puresleep device, whether positive or negative, could be quite valuable.


bchase1954

APAP?

Post by bchase1954 » Sat Jul 26, 2008 10:30 am

I'm not really "up" on these things.
What's an APAP?


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roster
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Re: APAP?

Post by roster » Sat Jul 26, 2008 11:10 am

[quote="bchase1954"]I'm not really "up" on these things.
What's an APAP?


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goose
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Post by goose » Sat Jul 26, 2008 2:32 pm

Sorry rejmd I don't buy the can't or won't adjust to the xPAP......

If you understand the diagnosis and it's ramifications and understand that your life depends on adjusting to the treatment, you will adjust.
Or you'll die -- Life is choices, and adjusting to xPAP is a choice. Either you wanna or you don't wanna.......(just like quitting smoking -- if you don't wanna, ya ain't gunna......simple).

My apnea is considered mild. I've been on the APAP machine for just over a year and I'm still working on it. I've just recently made some changes to my machines parameters and I'm feeling much better thank you......
I don't make changes willy-nilly but after much consideration. If I have questions, I ask. I've educated myself because it's important if I'm going to get better - I have a lot of peripheral conditions, as do others, that have been improving marginally as my treatment for apnea works better......For me the choice is easy.
Do I have issues. Yes.
Do I get frustrated with it. Absolutely!!

But I've chosen to work with it. If you read this forum long enough, you'll find there's a lot of people who didn't particularly care to participate in the treatment, but understanding the ramifications of ignoring the diagnosis made the choice to work with it. They come here for support which they get.
We don't label positive feedback "spam" unless it smells like spam, and the positive comments in this thread have that distinct odor (espeicallly from unregistered guests) -- just a judgment call on the part of those of us who have been here for a while, and heard it before.....(note that nobody has deleted any of the comments as spam)....

There are no panacea's nor are there any "easy way's out" -- I hope you choose to accept your treatment and work with it. If you have problems and/or frustrations, know you're not alone. We're here to help and commiserate.....
Good luck!!!! Take care

cheers
goose

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CPAPopedia Keywords Contained In This Post (Click For Definition): APAP

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CPAPopedia Keywords Contained In This Post (Click For Definition): APAP


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Humidifier: HC150 Heated Humidifier With Hose, 2 Chambers and Stand
Additional Comments: Also Use ComfortGel (s); Headrest (XL) and a PAP-Cap.
Last edited by goose on Sat Jul 26, 2008 3:31 pm, edited 1 time in total.
Wars arise from a failure to understand one another's humanness. Instead of summit meetings, why not have families meet for a picnic and get to know each other while the children play together?

-the Dalai Lama

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roster
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Post by roster » Sat Jul 26, 2008 3:16 pm

rejmd wrote:I have not tried the Puresleep device, but if I had good results with it, I might be reluctant to post here, because so many members would accuse me of spamming. .......
It would be unlikely since you are a registered user. The spammer is a guest and his comments sounds very much like a prepared sales pitch - prepared by someone who has a financial interest in the product.

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canuck88
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Post by canuck88 » Sat Jul 26, 2008 9:05 pm

Amazing how posts like these always come from 'guest' accounts...

Mike the guest

New PureSleep user

Post by Mike the guest » Wed Jul 30, 2008 3:04 pm

I'm a "guest account" so my opinion may be worth little. Just thought I'd throw in my $0.02 on the PureSleep device.

I ordered it (and the discounted "spare") about two weeks ago. It arrived in 3 or 4 days - on a Saturday no less.

I didn't get around to fitting it or trying to use it until last night. I followed the fitting instructions carefully and had little trouble with that process, although it was a little intimidating doing it for the first time.

I used the device right after fitting it, and slept through the night with it. I don't honestly know whether or not I snored, but my sense was that I did not.

I've never (yet) needed customer support from the company, so I can't comment on that. It's certainly disconcerting to hear the complaints in that area.

I'll say this - I've had two sleep studies done over the past 15 years, had nasal surgery, and done everything else short of CPAP and throat surgery to fix my snoring and constant fatigue. So this isn't something I'm just trying "casually." Over the years I've become very confident that I know exactly why I snore (jaw collapse), and how far my jaw needs to move in order to block the airway (or, more accurately, how little it needs to be held forward in order to NOT block the airway). So when I fit the PureSleep, I knew exactly what I was trying to accomplish, which may make the chances of success higher with it compared to someone who just knows they have a snoring problem and want to "try something."

One night with any solution is pretty meaningless, but I felt it was a good start. I didn't expect to be able to wear it the whole night the first night, but I did. I did have the joint pain this morning as described in the booklet, so we'll see how that plays out. My longer term concerns are whether it can have any negative effects on teeth or tooth root systems, or TMJ problems. Since I've never talked with a dentist who custom makes them, I can't compare PureSleep to those.

Mike
Olathe, Kansas


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roster
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Post by roster » Wed Jul 30, 2008 3:08 pm

Mike,

I would appreciate if you would occasionally update this thread on your progress.

Regards,

Rooster

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KSMike
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Post by KSMike » Wed Jul 30, 2008 3:15 pm

Wilco. I'm now a real person, registered as "KSMike." .

I should have also said I've been a mouth breather (while sleeping) most of my life because I simply cannot move enough air through my nose. Septum reconstruction and turbinate removal was intended to alleviate that, but it didn't help at all - although it was still one of the best things I've ever done because it virtually eliminated what had been debilitating seasonal allergy symptoms that I had for most of my life.

Without knowing what level of success I'll have with PureSleep, from a design standpoint I give it an A+. When I first took it out of the box my reaction was "What the .... is this?" The genius of it doesn't really become apparent until you fit it and see how the two different plastics work together. As a mouth breather, I was concerned that it might be designed with the assumption that the wearer could breathe through their nose. This is not the case; it was designed to allow unrestricted mouth breathing while still supporting the upper & lower bite in the intended position.

Other than the joint pain I had this morning, the only disappointment so far is that you can't yawn after waking up without removing it or having it come loose .

If it ultimately doesn't work for me, I'll still say it's an excellent effort.

Let me also say that I found this forum while doing a Google on "puresleep problem" trying to find cases of other people complaining or having problems with it. I did not read this entire thread prior to posting and now I see that there has been spamming, guests aren't trusted, someone here has a vested interest in a product, etc. So maybe I jumped the gun by posting. I'm certainly not trying to cause a problem for anyone or their product(s). Just posting honest feedback in case others are looking for it.

Mike